Epilepsy

Danniel - posted on 08/12/2015 ( 3 moms have responded )

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My 6 year old grandson has been foaming from the mouth at night when he sleeps at the end of the previous school year he was one on one with a teacher when he had a sezurie it took 3 months to get him in with The pediatric neurologist he had his EEG on the 23rd the doctor called yesterday and said the news was not good that my grandson has A severe case of Epilepsy and he has very little activity on the right side of his brain she said he is having several seizures while he sleeps she said we have to go to the children's hospital in iowa city iowa she said she was going to start him on meds and make the appointments in Iowa city this was on Monday I thought she would have called on Tuesday to at least get the meds started but no call? The thing that scares me to death is she kept telling my daughter over the phone how bad his brain looks and that things are not good she said that his sezuries are going to get more frequent and more severe.. We are worrying out selves sick and we are not sure what to do she will be receiving a call from is as soon as the office opens but she did not explain about the activity in his brain does any one know about this ?? Please help



and he has almost no activity on the right side of his brain

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♫ Shawnn ♪♫♫ - posted on 08/12/2015

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Who did she call, the clinic at Childrens, or the original physician?

Danniel - posted on 08/12/2015

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No it was the doctor herself that called not her staff my daughter called at 8 this morning we have still heard nothing

♫ Shawnn ♪♫♫ - posted on 08/12/2015

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Perhaps the physician is waiting for a response from your daughter?

Most times, when these calls are done, it is the medical office personnel, and they usually have no more info than what they give the parent at the time. They generally say "Dr. Smith has found unusual activity, and has scheduled a followup visit with (insert clinic here). This appointment is at (facility) on (date) at (time). Do you have any questions for the Doctor?", at which point is their cue to say "yes, what is...etc". The physician may not be available for immediate answer, but should return a call.

If your daughter is concerned about the upcoming clinic visit, she can also call the clinic, where (especially if it is the Children's Hospital Network) she will receive extensive information, and be able to ask questions.

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