Epilepsy at night

Sharon - posted on 04/09/2013 ( 1 mom has responded )

2

0

0

My daughter was diagnosed with occipital epilepsy when she was 6 she is now 10. The seizures started with a stare, then she would vomit and then she would sleep for a couple of hours. As she has gotten older the seizures have changed and she is able to tell me when they are coming on as she gets colours in her eyes followed by blurred vision, pins and needles and sometimes bad headaches. She rarely vomits anymore. Just as I was starting to get used to these types of seizures and be relatively calm about them before Christmas she had a seizure in the morning at 5.45am. I found her lying on her back gasping for air, her lips were blue and she was stiff. I got an awful fright as I'm a single mum and I was on my own. Since then I would check on her regularly throughout the night and have an awful fear that I will find her not breathing. Just two weeks ago I heard a thump and found my daughter on the ground lying face down beside her bed, same symptoms as before and roughly the same time 5.55am. I couldn't move her as she was so stiff and she was a dead weight. I got her into the recovery position but it lasted a good 5 minutes before she came around. Now I sleep in the room beside her and always have one ear listening out for any movement or sound. I check on her all the time and if I hear a noise I tell myself I better check on her just incase this time something bad happens. I am physically and emotionally drained and I don't know if I will ever get a full night sleep without worrying that I might lose the most precious thing in the world to me. Am I alone in the way I feel?

MOST HELPFUL POSTS

Roe - posted on 04/10/2013

2

0

1

Hi Sharon - contact your national epilepsy association or a local epilepsy group - there may be a sleep monitor or something that can help you.
Also, if she is medicated please ensure she is taking doses at the same time each day, and getting enough sleep. It is important that you are aware of the risks and part of helping you relax will be ensuring you have all the bases covered. Keep reading what you can of others experiences - if they've been there it can't hurt.
Best wishes

1 Comment

View replies by

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms