Found out our baby has only one kidney

Stacey - posted on 11/16/2009 ( 17 moms have responded )

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Hi we just found out at our scan today that our baby only has one kidney. I am not personally stressed as there are far worse things that could be wrong and i know many people live normal healthy lives with one kidney and sometimes don't even know it. I was just interested to know if other mums have been in this situation and what it has meant for them and their babies.

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Joanne - posted on 09/05/2012

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My baby is 4 months and he has a poly cystic right kidney, it's so full of cysts there is no space for kidney tissue, and it does not function.. His left is normal... Are there things to avoid? He is battling so much with teething and I'm scared to give too much medication for his pain, but the poor kid wakes 6 times a night and is totally uncomfortable... Can I medicate him as with a normal child?

Stacey - posted on 11/17/2009

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My husband found out he had only one kidney, but did not find out until he was 10. The worst thing for him is that he cuold not play any contact sports. Football was the big thing for him. But he played basket ball and baseball. Health wise he is fine, he does use the restroom more frequently and the Dr's keep an eye on his blood pressure. Your baby will be fine!!!!

Tina - posted on 06/17/2012

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My daughter is 6 and doing great. I just keep her out of certain sports at school and after. I also remind her teachers to make her drink water (she doesn't happen to do this enough) and make sure she eats healthy. She saw a urologist the first few years and has a renal sonogram once a year to make sure it is growing steadily. She was checked to be sure she didn't have a reflux problem (where urine goes up into the kidneys before coming out...that introduces bacteria and causes urinary tract infections. She was on prophylactic antibiotics as a baby and toddler but we stopped them since she never had an infection at around 2. She started getting allergic to them because of ear infections. (She also had a 2 mm hole in her heart that closed up, so maybe get an echo cardiogram done as a precaution.) I had 2 vessel cord while pregnant and we think there are urological issues genetically in my family.

Coolgirl426 - posted on 11/16/2009

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i dont have a baby that only has one kidney however...i recently went to have a cat scan done for an issue i was having with digestion and they discovered that i only have one kidney...i happen to be missing my right one...they said that i was born this way and i am 27 and just learned about it a month ago...i can say i went 27 years without ever knowing i was missing one...it never slowed me down...i have had two children and if it wasnt for the unrelated issues i was having then i would still probably not know...now that we know i only have one i was told that i would just have to have my kidney function tested once a year to make sure it was working the way it is suppose too...so i wouldnt worry to much about it...all it means for your baby is that they will only have one kidney...frankly i thought it was kind of cool...not to may people can say they only have one

Cassie - posted on 11/16/2009

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I was born with one kidney and lived a very healthy life, but was more prone to bladder infections and UTI's especially as a child so just watch for those symptoms in your baby. You'll probably have to have lab tests done to make sure your baby's kidney is still functioning well and there is no UTI present. And as for sports, Dr's recommended I not play football, but I still played basketball and had no problems. Just make sure people are aware of the risk and if you're worried about physical contact, people will generally be more cautious if they know about it.

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Rachel - posted on 11/17/2009

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My daughter was born with several birth defects (holes in her heart, spinal defects vacterl syndrome) but her kidneys were fine. I found a non-profit called Birth Defect Research for Children www.birthdefects.org quite helpful. I was very much focussed on the cause of her defects at the time. They have registry that monitors birth defects and documents patterns. It's very easy to participate you just fill out a questionaire. Good luck to you and remember to trust yourself when it comes to the care of your baby.

Rachel

Sandra - posted on 11/16/2009

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My Uncle is in his fifties and has had a normal life with one kidney. He does have a tendency for bladder infections, and he has to watch his alcohol intake. He found out in his 30's.

Stacey - posted on 11/16/2009

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Thankyou everyone for your support and encouragement. I know there are so many families dealing with much worse issues than this but it always a little upsetting to find out even something relatively minor is wrong. We all want our babies to be perfect, but I guess this just doesn't always happen. I have already been blessed with four beautiful healthy children, and I have faith that this next bubba, although not "perfect" will be just as healthy, even if we need to take a little more care with him. If nothing else this has given us little insight and greater empathy for parents who have to deal with much more serious problems with their babies.

Kimberly - posted on 11/16/2009

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My friends son only has one kidney and he has a normal life. He has to go for an ultrasound once a year and she has to make sure they get the flu shot. She was also told that when he gets older he wont be able to play high contact sports because of the risk of damaging the one good kidney that he has. Other than that no problems.

Iysha - posted on 11/16/2009

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I have not been in this situation, but my little cousin was born with numerous problems, one being bad kidneys. He just turned 10 this month and you would never know he was sick. My aunt was in her teens when a bad case of strep throat spread and damaged her kidneys. My father donated his kidney to her after her other donated kidneys failed. She was expected to live to be no more than 20 something...she is now past 50. My dad has been doing well with one kidney too.

They (aunt and dad) have to watch what they eat and drink. My cousin has to limit some of the things he eats and has to take a special medicine before he eats cirtain types of food. nothing major though.

Jessica - posted on 11/16/2009

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I havent been in that situation but good luck and im sorry to hear that!!!

April - posted on 11/16/2009

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Hi Stacey, if your little one has one normal and functioning kidney, then things are looking good. Many people live normal and healthy lives with one kidney, like Danielle advised..ask heaps of questions and if you need more information, then sure, join a support group..in the meantime, look after yourself because ultimately your health is the most important thing for your family.. Hope all goes well at the next scan.. My experience with kidney problems was not so great, and I lost a little girl to end stage kidney disease at 4 weeks, but her scan results were very telling at even 14 weeks, sounds like the doctors are giving you reason to believe all will be fine.. so try not to worry too much..good luck and health and peace to you..

Andrea - posted on 11/16/2009

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We found at 13 weeks that our little girl had gastrochisis and has an inlarged kindey.. So we go to see surgery on 12-9-09 and to see the kidney doctors the same day to find out what/how bad it is and if they are both working.. She is 7 months old and doing great you would never know she was born at 36 weeks with so many problem.. What I did was got on the internet and researched her problems.. This helped me big time made not as nevous cuz I knew she has a chance for life.. All I did was typed in what i wanted to know and off i went.. It is a scarey thing to hear your baby has something wrong.. Then it is even scarerey to have the doctors tell you that you should just end the it.. My hubby and I neither one could ever have done it.. Hope that is might help.. Also you can talk with the doctors and tell them that you want to know if exactly how this is going to affect your baby... Hope all the best to you and your family.. Take Care..

Danielle - posted on 11/16/2009

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I believe only one kidney is needed. My daughter was born with one normal size kidney and one smaller one. Just dont be afraid to ask TONS of questions. They'll give you all the answers and should be able to give you information on people in your area that have children that are the same.

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