found out our son has diaphragmatic hernia

Candice - posted on 12/21/2014 ( 3 moms have responded )

10

0

5

Hi i went for just a standard scan at the fetal assesment at 20 week scan. Everything was going so well and it was all laughs and sighs and then the sanographer got very quiet and we knew somwthung was wrong...thats when they dropped the bomb of what is worng with our boy. Shocked and overwhelmed....i went back to them for amniocentesis for a chromosone test... that was not easy. 2-3 weeks i had to wait for our results. The waiting and not knowing was killing me. Then after 2 weeks we were told that the results came back normal. This was a little glimmer of positive news. We meet with the Prof and two other Dr's to discuss what is the next lot of steps. I am trying to stay positive and have a visual of us leaving the hospital with our little boy...who we have named Maxx... i pray everyday that Maxx lungs develope with enough room and that his heart does not get compromised... this all feels like a terrible nightmare and i cant wake up. How am i to carry on with a smile on my face when my heart is aching so much? How do i react when people ask about me being pregnant and start asking personal questions? So many roller coaster of emotions.... is anyone else have the same feelings and have the same going on...or gone threw this and have advice for me?

3 Comments

View replies by

Terri - posted on 12/21/2014

9

1

1

Hello I went through the exact same thing you are right now. In 2005 we found out our unborn daughter had cdh. Hers was severe and doctors told us to abort. We didn't and although she went through a ton of bad, bad things she is alive and healthy today. She is 8 and loves life. There is hope. I started a page to help support parents. Check it out. https://www.facebook.com/raisingcdhkids If you ever want to talk my email is mycdhlife@gmail.com The unknows are so scary. Hang in there and I'm saying many prayers for you and Maxx.

Terri - posted on 12/21/2014

9

1

1

Hello I went through the exact same thing you are right now. In 2005 we found out our unborn daughter had cdh. Hers was severe and doctors told us to abort. We didn't and although she went through a ton of bad, bad things she is alive and healthy today. She is 8 and loves life. There is hope. I started a page to help support parents. Check it out. https://www.facebook.com/raisingcdhkids If you ever want to talk my email is mycdhlife@gmail.com The unknows are so scary. Hang in there and I'm saying many prayers for you and Maxx.

Terri - posted on 12/21/2014

9

1

1

Hello I went through the exact same thing you are right now. In 2005 we found out our unborn daughter had cdh. Hers was severe and doctors told us to abort. We didn't and although she went through a ton of bad, bad things she is alive and healthy today. She is 8 and loves life. There is hope. I started a page to help support parents. Check it out. https://www.facebook.com/raisingcdhkids If you ever want to talk my email is mycdhlife@gmail.com The unknows are so scary. Hang in there and I'm saying many prayers for you and Maxx.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms