future babies after recovering from peripartum cardiomyopathy

Vicky - posted on 12/16/2010 ( 8 moms have responded )

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I am just wondering, has anyone ever had/recovered from peripartum cardiomyopathy and have you gone on to have children in the future and came out ok? or did you contract the problem again?

I ask because I have peripartum cardiomyopathy and I was diagnosed after my first baby was born, I found out about 6 months ago.

I am making very good recovery with a low sodium diet and medication - my heart is nearly back to "normal size", however I am still struggling with the decision whether or not to have a second child, I always wanted two children and while I know I should be happy and grateful with my little angel that I have (and trust me I am!!!) I still am sad at the thought of never having that second baby - but of course I know it would be so high risk and I want my daughter Sophie to have me and I don't want to die or anything as I can't bear the thought of not being here for her and watching her grow, I just am so confused as to what to do.

Can anyone share stories on this? have you gone through this? or are you going through this? I would love to hear your stories!!! :)

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Carolyn - posted on 01/23/2011

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I had my son in june of 2006 and was diognosed when I went to have the staples taken out from my c-section. I have only had one child and feel like I should attribute my condition to my crazy life prior to being pregnant and not taking good care of myself when I was pregnant. I gained 100 lbs with him and felt my dr should have been moore in tune with what was going on with me. Anyway I just found out I was pregnant and my son is 4 1/2 I go to the high risk pregnancy doctor on Tuesday. I know I am going to give my best in this pregnancy, exercise and take care of myself and such. I will keep you posted. Wish me luck!!

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Johnita - posted on 12/02/2011

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I got diagnosed a week after I had my son and I was in the hospital for a week. I always dreamed of having a big family cause I came from a big family. I have been doing research and everything is against it and it sucks but your best bet along with mine is to talk to your doctor and your partner.

Kim - posted on 03/01/2011

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hi vicky yes i have this condition, i found out 2 weeks after i had my twins even though all the signs were there. I blame the hospital for some of it. I kept telling them something was wrong and nobody would listen to me. I would like to have another baby too, so please let me know what you find out. I am going through alot of angry issues too and i don't know if it is my medicine or depression or what i just want to be myself again., tired all the time angry all the time and i take it out on my 6 year old. and i know it is not right. I am right now single raising 3 kids. I have alot on my plate and nobody to help me with things. mom helps out when she can but i am overwhelmed with alot of things. I don' really have alot of friends that are my friends just friends of my ex. All my good friends live out of state. I am trying my best to do what i can. My girls are great. I am just really tired of telling my daughter sorry we can't do this because of whatever the excuse is that day from me. i want her to have a great childhood tht she can talk about with friends not something she will talk to a therpist about because mommy was so mean. I love my girls with all my heart and just wish i could get back to loving me too.

Vicky - posted on 01/23/2011

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Oh good luck Carolyn!!! please do keep me posted!!! what is your email?? please email me: vixxieink@yahoo.com.au

Vicky - posted on 12/16/2010

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thank you, yes my cardiologist is gathering information and speaking with colleagues of hers, I will find out at my next appointment in January.
I am not sure what I will do, if the risk is too high, I wont do it, but apparently the information on the internet isn't as accurate as they have made progress in just the last few years on this condition.
thanks for your advice. anyone else?
even if you don't have the condition, if you did, what would you do?

Louise - posted on 12/16/2010

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I do not have this condition but I have heard of it and the risks involved with having subsequent children. The risk to you is very high and something that you really need to think about. I would speak to a specialist before you make your final choice. I understand your need to complete your family in your eyes but seriously is it really worth the risk of your life! It is your choice completley but in my eyes it is to high a risk. That is my opinion but the urge to complete your family may spur you on to try again so gather as much information as you can. Good luck with what ever you decide.

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