Gastroschisis

Diana - posted on 07/24/2015 ( 1 mom has responded )

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I'm about 12weeks and 2days and my little baby just got diagnosed with Gastroschisis. I'm freaking out, an emotional wreck because of course like any mom you don't want to hear that something is wrong with your unborn baby. What's going through my head is that will my baby have long term problems? How will she or he be growing up? How many surgeries will he or she have? Will he or she have ongoing pain or procedures because of this? Any parents that went through this or anyone that had this at birth your advice and story would be much appreciated!! Thank you!

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Sarah - posted on 07/24/2015

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I worked in labor and delivery for many years and I wish there were clear cut answers to your questions. Depending on the severity of the defect, your baby may need breathing support after birth. You can expect to have a c-section. The baby will not be able to spend much time with you at first, as there will be a team of specialist s there to evaluate the baby. Initially the abdominal wall will be open and the intestines that are not inside will be protected by special dressings. Each day, bit by bit the doctor will reduce the intestine back into the abdomen and be able to close the abdominal wall. Many babies may have digestive issues for a time but grow up without complications.
Pump your milk after the birth to store and feed your baby. If you do not live nearby the hospital your baby will be at, you may want to discuss temporary housing so you can be right nearby.
I know how scary this is and you are going to feel uncertain and have tons of questions. Write them down and talk to the neonatologist at the hospital where you plan on delivering.

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