Gastroschisis Update...

Andrea - posted on 01/21/2014 ( 9 moms have responded )

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Have any moms found out or had a baby with Gastroschisis???? My daughter was born 4 almost 5 years ago at 36 weeks 3lbs 8oz 16 1/4 in long with a 6 week stay in the nicu. They took her in for surgery at 8 days old they were able to get every thing back in but had to let it heal on it's own.. She hasn't had any major issues since coming home Mother's day weekend.. She has some potty issues, can't have chocolate makes her sick and can only handle a little bit of regular milk at a time. She has just started really taking a notice that her belly is a different then her friends and family. But I always reassure her that her belly is normal and that our bellies are the funny ones.. I would really like to talk with moms who have had or will be having a Gastro. baby...

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Andrea - posted on 01/22/2014

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That is not what I am saying ... I can not see what said Pamela Hebner Wrote... I am just trying to figure out why I can not see what any one is typing other then other's answers and that is it... I am not upset... I just was looking for people with something in common.. Sorry didn't mean to be rude.. I understand everyone has hurts and problems... I am just asking for some respect to the post I made about Birth defect Gastroschisis... Sorry if that I upset you... I never said you said anything offensive never said you needed to remove yourself either. I just have been looking for parents to had a child or will be having a child with Gastroschisis..

So Joe Petty TX, How are you doing today?

Jamie - posted on 01/22/2014

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Andrea, I don't know what I said offense. I am new at this and I only answered another lady's reply. I can't see how only half of what I say is coming thru. I will unsubscribe now. Can't really afford the Data use anyway. I can feel you are upset. May when I press return it double spaces. Ok please except apologies and I will be out of here today.
My wife let me write on here i have hurts too! I am dad bye!
Joe
Petty Tx

Andrea - posted on 01/22/2014

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Ok not to sound rude or anything but 1 half the comments are not showing up so that I can read them and 2 What does any of what you are talking about have to do with the fact that I am looking to connect with moms who have or will be having GASTROSCHISIS babies?

So please if you have a question or a comment that's great but please don't use this birth defect page and a rant page.. My daughter struggles with potty issues and many other things from time to time.. so please and thank you be respectful of a 4 almost 5 year old little girl..

Thank you.

Jamie - posted on 01/22/2014

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Pamela,
I spoke my peace on Zhanoyan's comments. I did not know if I was allowed to speak my thoughts. Thanks for agreeing. Some folks do things differently. I do take vitimins but only if I know... I know... I know.

My wife and I have IPhones. We read Circle of Moms together, but she does not choose to take the time and I do.

At the start I stated I was dad and I am Joe of Petty, Tx. We have a concerned daughter I speak of all the time. I am retired. I enjoy hearing others because I love people. I hear their crys. I know their words. I need their comfort. I have Someone who died for me that helps, but people who stand together with understanding have healing.

I hope I have not done wrong for I am a hurting dad not a mom. But I to love my daughter. We were deleting these E-Mails for so long and one day I opened one and a story touched me. I have a story and so I shared mine. Although, my story will live on for ever. For I love my wife and my daughter. Not sure if she will ever be right but when I joined in with the circleofmoms.com I began to feel better.
Thanks to all of you out their.
Dad
Joe
Petty

Andrea - posted on 01/21/2014

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Thank you Jamie for your earlier comment, I didn't care for Zhaoyan's either.

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