GERD, acid reflux, esophogas issues, and NO SLEEP kiddos.

Jennifer - posted on 12/10/2008 ( 6 moms have responded )

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WHat has helped your child suffering from this??

We haven't slept through the night in over a year (our ds is 1), not even close.

OUr ds urps of food burps all night long and screams in discomfort.

He won't eat over 6 oz otherwise pukes.



Our ped is taking things SO slowly

The GI doc is 6 months out.



What has worked for your reflux babe??



We've tried Prevacid, Reglan, Mylanta, different formulas/diets, propping up, all to no success.

What does the GI specialist do for your child needing help??

Last night I nearly took him to the ER. What to do????!

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Lisa - posted on 12/12/2011

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My son is 10 weeks old and we have been dealing with this GERD stuff now since he was born. His GERD was so bad that he stopped latching and refused to breast feed. Despite numerous attempts to get him to latch and several visits with a lactation specialist he would not so he is now formula fed through a bottle. We have him on a hydrolyzed formula and it seems to help somewhat. His doctor started him on Zantac at 3 weeks and it helped a little but he was still having a lot of issues (including suspected Sandifer Syndrome). His pediatrician has decided that Zantac is not working so we just switched to Prevacid last week. The transition is proving to be horrible! I mean his GERD was by no mean under control from the Zantac but without it he is back to how he was at 3 weeks while we wait for the Prevacid to kick in. He is not sleeping, he is spitting up constantly, he is wheezing every time he eats, and he just wants to be held. I feel horrible for him. To make matters more complicated I feel utterly guilty. I had infant/childhood GERD and ended up with a Nissen Fundoplication as a teenager after many years of trying to treat the GERD with medicine and ending with aspiration pneumonia and my esophogus being partially paralyzed due to the damage. I feel like I totally passed on this horrible thing to him! I am just praying the Prevacid helps and that he is one of those kiddo's who grows out of it. Looking forward to getting some tips as well!

Jennifer - posted on 12/10/2008

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Wow, great responses, thank you.

Yes, our doc does not understand the severity here. The only reason we were refered to the GI doc now, is becaues our ped was out sick the week I took him in.



OUr ds is no 20 lbs with a little extra. He's thin for sure. He's healthy otherwise, but I worry about the lasting effects from this.



I've heard about the Amby bed, but our ds is so active, I'm afraid he'll fall out.



I think surgery might be in order here to fix the flap in his tummy that is probably not working. I just wondered if anyone has had this?



And Gos Bless him, I know there's a plan for this little man, and this is all part if his life experience that is shaping him in the way God wants him... but now it's time to bring the mamma bear out and get some serios action from our doc;;;; oh-yeah!!

Thanks, Jennifer

User - posted on 12/10/2008

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If he is burping a lot , have you tried OVOL? there is a baby version and several different strengths in regular. The doctor told me it is not something you need to worry about overdosing. Does the problem increase or decrease with the amount of milk he drinks? Sometimes milk is recommended to dilute the acid. If he is lactose intolerant, this will increase his problem. Try Lactaid or Lactese- not drugs, just provides the enzymes needed to digest the milk sugar. This might settle his stomach enough to decrease the burps. There is also Beano for gas from fruits and vegetables - also not a drug, enzymes.
I would probably try to see another doctor, sometimes doctors believe a parent is exaggerating if the problem is outside of the doctors' previous experience. OK, not probably, I would hot foot it to another doctor as soon as I got the feeling that the doctor was not recognizing the seriousness of the issue. The doctor has as least hundreds of other patients, you have to advocate for your child. If there are other doctors available, you need to get your child to them for other opinions. Good luck, I hope it is solved soon.

Christina - posted on 12/10/2008

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We went through this with my son...but I don't think it was as bad as yours. We saw a GI doctor within the first couple of months, though. We started on Zantac, rice cereal at 2 months, tried Alimentum formula, GentleEase Lipil, Soy, no noticeable difference on any of them. We used the foam wedge sleep positioner...and he finally started sleeping through the night around 6 months old. By 1, he had grown out of the reflux issues completely. He wore a bib for the first year due to constant spitting up, and terrible colic the first few months. Eventually, he just grew out of it. How much does your son weigh, may I ask?

Rebekah - posted on 12/10/2008

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Oh also I don't know if you are a believer in Jesus Christ, but I recommend prayer...he can heal your baby the way no doctor can

Rebekah - posted on 12/10/2008

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Try an Amby Baby Bed they are very expensive...we had to put it on a credit card at first and pay it off with tax return it is clinically proven to help with GERD babies because of the way it cradles them, they sleep in a slightly upright position so it eliminates a lot of the pain...I wen through the same thing with my son, he is getting better now but is almost two...he still does not usually sleep through the night but it is usually from teething now. They grow out of GERD, you just have to realize it's not your fault and it's temporary and that soon...maybe in a year you will be sleeping through the night :) Also for the Amby Bed you can find used ones cheaper online at ebay and craigslist etc.

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