Had our baby girl die at two mths old with cf.

Andrea Jean - posted on 09/17/2015 ( 3 moms have responded )

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Me and my husband have the cf gene. We had a baby girl with cf and she died at two months old. We did not know we had it or anything about c.f. we found out a week after she was born and rushed to children's hospital. She had to have surgery to get ostamy bags to have bowels her intestines was blocked so she could not have normal dirty diapers. Then after changing them she got to get them back in to normal and started having regularly dirty diapers and then she got a infection and had to have more surgeries. And did not make it

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Gardensparrow - posted on 09/22/2015

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We're definitely here for you, friend, and I'm going to be specifically praying for your boys. Thanks for the update...

Gardensparrow - posted on 09/18/2015

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I'm so sorry for what you and your husband have been through, Andrea. I know you still must be grieving the loss of your little girl, and I'm glad you felt free to share with us. I'll certainly be praying for you and your husband in the days ahead. Keep us posted on how you're doing, OK? ((Hugs))

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Andrea Jean - posted on 09/18/2015

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Thank you so much. I think all you mommies will help me through this.I sure will we are doing ok right now my two boys husbands step sons are the ones I worry about the most they miss there baby sissy so much to. We have our good and bad days but we pull through it together and family members and friends.

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