Has anyone had CMV? If so did your baby have it and what side effects did they have?

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Luci - posted on 11/15/2008

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CMV is really common...something like 90% of 5 year olds who have been in pre-school or day care have had it. A bit like mono in that it stays in your system after your symptoms disappear. It looks like a minor cold in healthy folks. The only time it's really dangerous, as far as I understand it, is for people who are immune suppressed or if you first contract it WHILE you are pregnant. In that case, it's dangerous for the baby and can cause a range of problems from minor learning disabilities to cranio-facial problems (cleft palate/ lip) and other disabilities. The worst are apparent at birth...more minor learning disabilities naturally don't show up until the kid is in school.

I was a special ed teacher and had a kid with active CMV while I was teaching and trying to get pregnant. Never contracted it myself, which means the Red Cross loves to get my blood for infants and children....

Hope that helps...

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~♥Little Miss - posted on 03/26/2015

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Ayesha - posted on 03/25/2015

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Hi Karen
I have a daughter born in august 2014. CMV was diagnosed when i was 27 weeks pregnant and her head size was small in scan. I had scans regularly throughout my pregnancyf. She stayed in NICU for 3 weeks and had Ganciclovir. Hafsa has hearing loss and damage in brain. She is 7 months exactly and has developmental delays. She is not eating any solids and not holding her head upright.

I hope your daughter is well and i want to know how you are getting on with her? Any suggestions for me to help Hafsa?

Wish you all the best
xx

Amy - posted on 01/19/2009

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Thanks! So far everything has been going ok. I'm currently 37weeks pregnant. I have been having ultra sounds every 3weeks for the past 2months and everything appears good. They will do an exam on him soon after he is born to make sure he is ok but so far so good.

User - posted on 01/19/2009

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I had CMV when I was pregnant with my third daughter,unfortunately she died inthe womb at 17weeks.I went on to have another baby another girl,she was an IUGR baby .Low birth weight born at 39wks.She is still little and at 3 weighs only 11kg. She is a very feisty little thing and we all love her to bits..I wish you well.xx

Karen - posted on 01/19/2009

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My daughter was born with cong. CMV. She had low birth weight and some brain damage along with low platlets. She is now almost 5 years old. She has a long way to go but she is a blessing every day she is here. If you need some one to talk to just send me a email through facebook and I will get back to you.

Meg - posted on 01/19/2009

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Hi- My daughter is almost 21 years old & I contracted CMV in the 1st trimester. I was 17 yrs old & no one knew what was going on! SCary! She was born completely deaf, MR, cerebral palsy on the right, developmental delays, enlarged liver & spleen Many, many aspiration pnuemonia's, seizure disorder, g-tube fed(after age 3 she stopped eating) let's see what else? IDK it has been a loooong 21 years! She is actually pretty healthy right now. She has been living @ a residential school since 17 & we see her on weekends & holidays. It actually works well because of her behaviors & i have 3 other kids @ home. Ask away, any ?? let me know!

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I'd like to add.. My first born child, now a 9 year old, was born CMV+ (I am an RN). Although I don't disagree that being exposed to CMV for this first time during pregnancy is bad.... it should be clarified that contracting it in the first tri-mester is where it does cause the most damage to the fetus. CMV cytomegalovirus means "big cell virus" because it causes cells to swell up and die. It's a very common virus (it presents with flu-like symptoms) and when you're pregnant some of the baby's cells get infected and die off instead of growing. This affects many organs, including the brain. Common disabilities include cerebral palsy, vision and hearing problems.
My son is a spastic quad, hearing loss and vision loss. He uses a computer to speak with. My two other children (one born about 14 months after are unaffected)

Amy - posted on 11/15/2008

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Thanks! I had blood work done to test for it monday. I won't find out the results until the 20th.

Heidi - posted on 11/15/2008

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I was exposed to CMV when I was teaching public school. My daughter was born with a condition called hydrocephalus (water on the brain) and they thought it was CMV. It ended up NOT being caused by the CMV virus, however that is often the result of exposure. If you are pregnant and exposed, it can be very dangerous for the fetus. There are blood tests they can run to check if you have it, and also a urine test on the babe, if needed.. They ended up running a urine catch test on my newborn to test for it and it was negative.

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