Has anyone heard of post tubal syndrome?

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Nicolette Paige - posted on 02/27/2013

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I had my tubes tied two months ago after the birth of my youngest, I have been having severe migraines, tired all of the time, I have had a 3 week period, passing a ton of blood clots, losing weight, I have post partum depression, I don't understand what is going on with my body, I have cramps along my cervix... im worried, it makes me wonder if I have cervical cancer.. any advice?

Sabrina - posted on 01/14/2009

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I am a bit wary of admitting this in an open forum such as this one, but I am an Obstetrician and Gynaecologist working for the NHS in London. I feel that doctors get bashed around a lot in internet forums, which is fine really as most of the time problems with the system are genuinely to blame for people's dissatisfaction. However, I wanted to say a few things with regards to the long post copied from the internet site that Marcie posted.
Firstly, any surgical procedure has risks. For all of you who had ligations, I am sure you must have had a session by a doctor where you were counselled of all the risks. I always tell people of risk of 1) pregnancy - 1 in 200 2) relative increased risk of ectopic pregnancy 3) emotional regret and depression 4) surgical risks such as those associated with anaesthetic, surgical entry, or visualising the surgical field. I also tell people it is a permanent procedure with no chance for reversal under the NHS, and that there are plenty other options for birth control, equally if not more reliable, that can be reversed. There is no firm evidence linking the other symptoms (palpitations, muscle ache, headache, etc) to tubal ligation as it is a physical barrier to contraception, it doesn't affect your ovaries (estrogen production) or any other hormone that we know of. Obviously, I am not denying that your symptoms are real, or that they might be in some way linked to the ligation. I am saying that we just don't know at the moment and that the vast majority of women that have the procedure do not have any problems.
In terms of the accusation that we are lining our pockets to go play golf, I really feel sad about. I don't get paid any more or less for convincing people to have surgery. In fact, most of the time I am trying to convince women not to have a TL - for example if they are in a young age group (incidence of regret is higher), or if they haven't tried alternatives that may suit them such as the Mirena coil. If they are not having it in conjunction with a caesarean i.e. an operation in itself, then I always tell them that there are lots of alternative with far fewer risks such as vasectomy, that has only 1 in 2000 chance of failure.
The consent form is designed to protect patients, so they understand what operation they are having and what the risks are, to make the right decision for themselves. Not to protect doctors from litigation per se. I believe that my strongest protection from litigation is to advise my patients as best I can with the knowledge that I have as a professional, and to let them decide what course of treatment they want bearing in mind all the risks.
I believe this syndrome is an interesting one and perhaps I should bring it up when talking to patients in the future, to say there has been anecdotal reports of such problems.
In terms of doctors refusing to perform hysterectomies, reversals, etc and "not taking you seriously", all I can say is that these surgeries in themselves have many risks and to do a hysterectomy is no light affair or decision, We do perform them for women with troublesome periods, after long discussion and trying other treatments. But to do one because of symptoms like migraine and joint pain, where there is no firm medical consensus or evidence linking the two, would not be acceptable practice. What if you had a haemorrhage or a damaged ureter? Doctors are perfectly aware of all iatrogenic risks to all treatments, which is why sometimes to do nothing is the better treatment, though it might make you more unpopular.

Kimberly - posted on 11/09/2012

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I had my tubal ligation almost 21/2 yrs ago. I noticed symptoms soon after. Headaches, crazy periods (with clots so large that it looks like I am having a miscarriage,) anxiety, depression, feeling unwell, fatigue... I was never able to take birthcontrol and we decided not to try for any more children, we had 5 miscarriages between our daughter and son, so a TL seemed the best fit. NO ONE ever told me that there were going to be problems like this!! And the doctors just listen and say hmmm. I honestly think if I can possibly afford it, i will have my TL reversed.

Cyndi - posted on 04/19/2009

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it is called post tubal ligation syndrome ... it is real and it sucks . the dr. doesn't tell you about it till its already done . when you get a tubal you are cutting off nerve and blood cerculation that is the cause of lots of other medical problems. that can't be fixed till you get a reversal. and even after you get the reversal i have heard it takes a few mths for your body to get back to normal .

Chandra - posted on 01/27/2013

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How am going through it all and it only been 10 months ago.I mean there is cramps, bleeding like crazy, and mood swing out this world. Unable to really get a grip lately I'm really going to do some reaching on this ......really wish someone would have told me the skinny on post tubial syndrome

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Chandra - posted on 01/27/2013

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So happy that am not crazy I really need to make an appt. With my obgyn asap!

Melissa - posted on 01/20/2009

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Quoting Marcie:

Has anyone heard of post tubal syndrome?




I had a tubal after my son and then about 6 months later I had missed periods and we found out I had Polycystic Ovary Syndrome, which makes you miss here and there but I didn't clot or anything, but it's something to look into, maybe. hope this helps Melissa

Aleathia - posted on 01/20/2009

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since you guys bought it up since i had my tubes tied ive been haveing period problems...like super heavy cycle days and more frequent headaches...clotting all that....i bought it up to my dr. he says it is normal for up to 3yrs after you have ur tubes tied..so he gave me sum for both migrane and tension headaches and that was that...still get those heavy periods that totally drain me but at least i have sum for my headaches ?

Salem - posted on 01/20/2009

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I just had a TL in July after my fourth.  I started my period in December, short and heavy, after a pregnancy test indicated pregnancy, but blood test did not.  Now it has been 6 weeks and I am still waiting to start.  I don't know what to say about it, but I'm sure the TL is probably to blame for whatever problem I'm having.  My mom had one, and she reported zero problems, so I thought I'd be OK.  My appetite has slowed down a bit, too, which is great, but sometimes I think it is all in my head.  If I don't start after two more weeks, I will take another pregnancy test and call my doctor.  I saw on the list that pregnancy was a "side effect", so I will have to look into it.

Cheryl - posted on 01/19/2009

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I had a TL after my last child was born in 2005 by C section.  I never had any councelling of any kind to prepare me for it.  I experienced very heavy periods, including clotting, when I was 16 or so but they had since stopped.  I have 2 older children, who were both delivered by C section as well, and everything was fine after I had them.  It was only after having my last son and a TL that I started experiencing some problems.  Even though it has been almost 4 years since having the procedure done, I still have very heavy periods, sometimes clotting, which I have been trying to control with birth control pills.  They do seem to be working to some degree but I still experience spotting and irregular periods.  I have also been to my dr about the light headedness and dizziness and he has been telling me it is due to stress, which I'm not sure I believe.  During my C section they found a growth on my ovary, but I had severe bruising and discomfort afterwards which I didn't experience with my first 2 C sections.  Overall I've just found this C section and TL very hard to recover from and since reading through the list of symptoms I think I may be going to speak with my dr again.

Cheryl - posted on 01/19/2009

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I had a TL after my last child was born in 2005 by C section.  I never had any councelling of any kind to prepare me for it.  I experienced very heavy periods, including clotting, when I was 16 or so but they had since stopped.  I have 2 older children, who were both delivered by C section as well, and everything was fine after I had them.  It was only after having my last son and a TL that I started experiencing some problems.  Even though it has been almost 4 years since having the procedure done, I still have very heavy periods, sometimes clotting, which I have been trying to control with birth control pills.  They do seem to be working to some degree but I still experience spotting and irregular periods.  I have also been to my dr about the light headedness and dizziness and he has been telling me it is due to stress, which I'm not sure I believe.  During my C section they found a growth on my ovary, but I had severe bruising and discomfort afterwards which I didn't experience with my first 2 C sections.  Overall I've just found this C section and TL very hard to recover from and since reading through the list of symptoms I think I may be going to speak with my dr again.

Lori - posted on 01/18/2009

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Marcie,



Thanks for the list of symptoms.  I got my TL two years ago and at that time a friend had told me some symptoms she had had with hers.  I have experienced quite a few of these symptoms also but I wasn't sure if it was due to my TL or because I may be starting perimenopause as I will be 40 this year.  My mother started perimenopause when she was around 35 so I assumed that maybe I was going through it in my late 30s as well.  Anyway, thanks again for the list.

Marcie - posted on 01/18/2009

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My first two were really good about sleeping through the night. Hell when I had my son the first night i brought him home he woke up around midnight and went back to sleep about one. I was expecting to have to get up at least once before daylight hit. I woke up at 9:30 and he still wasn't awake yet. I freaked out. I went over there and felt to see if he was breathing and then  woke up him. I didn't expect that. I was really lucky with him he would only wake up one or two times in a night and the same happened with my daughter after him. Then the last two seemed to take forever to get to sleep through the night. My 3 year old would wake up every hour on the hour for the longest time and he was a couple months past one before he started sleeping through the night. And now my youngest isn't sleeping through the night either and he is 18 months. But usually if i get him something to drink he will go right back to sleep.

Kim - posted on 01/18/2009

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I guess not! I assume this will get better once the baby actually sleeps, but if he's anything like my 2-year-old, it's going to be LONG time til that happens! LOL



 

Marcie - posted on 01/18/2009

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lol. I bet. I was exhuasted with 2 also. I guess at least i got it all out of the way quickly. lol Since my kids are 6, 4, 3, and 1. Never a dull moment in my house! lol

Marcie - posted on 01/18/2009

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i definally agree that there are way to many people that have the same symptoms afterwads. I do not have thyroid problems though so I know that is isn't a cause for me. And I dont regret what I did. Every pregnancy i had just made me sicker and sicker. I have four beautiful children. So really I accepted the fact that there are no more babies for me after I had my youngest.



 

Kristen - posted on 01/17/2009

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Oh, yes and If I knew everything I know now that I've read (since doctors do not seem to think it's real), I would never have opted for the surgery. It has caused havoc in my body and mind. Moms thinking of doing it who have had depression issues in the past - DON'T.

Kim - posted on 01/16/2009

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Um, I really want it. I'm done having kids -- both of my pregnancies nearly killed me, literally -- so there's NO regret here. And I do have thyroid issues which are 100% under control. Maybe it's not the tubal that's causing all these issues, but I think that there's definitely enough people out there with similar symptoms with the tubal in common that it's worth being studied. I'm glad you were able to get past your symptoms, Dorota, but to dismiss it as psychosomatic isn't fair to those of us who are still dealing with this.  And, like I said, it's definitely not a regret issue on my end of things.

Lisa - posted on 01/16/2009

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It is interesting that you mention thyroid because I am on thyroid medicine.  Have been for about 3 years now.  My son just turned 2 and my tubal was 2 years ago.  My periods are heavy but last longer now, at least 7 days.  I don't have all the other symptoms listed on here though.  Just painful, heavy periods that last longer and come every 3 weeks instead of every 28 days.  That is what I hate most.  As soon as I finish it is almost time to start again.  Bummer!

Dorota - posted on 01/16/2009

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It works for you only if you really want it.  If you are not sure that you're done with having kids you will feel bad after the tubal litigation.  Many women feel so sad and bad after this surgery that they go through all the problems.  The worry and stress make them sick and feel all the symptoms.  That's what was happening to me, first few weeks I wasn't sure if it was a good choice so I started to feel many of the above described symptoms but then I said to myself that it was a good decision.  I didn't want anymore children, and I don't want to use any hormone pills or any other "devices".  It was the only choice for me.  And slowly all the symptoms disappeared except irregular and heavy periods (but very short 2-3 days), but my doctor said that it could be a thytoid problems, so I'm going to see a specialist very soon.  I hope that this kind of thinking will help at least some of you as it helped me.  Good Luck

Dorota - posted on 01/16/2009

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It works for you only if you really want it.  If you are not sure that you're done with having kids you will feel bad after the tubal litigation.  Many women feel so sad and bad after this surgery that they go through all the problems.  The worry and stress make them sick and feel all the symptoms.  That's what was happening to me, first few weeks I wasn't sure if it was a good choice so I started to feel many of the above described symptoms but then I said to myself that it was a good decision.  I didn't want anymore children, and I don't want to use any hormone pills or any other "devices".  It was the only choice for me.  And slowly all the symptoms disappeared except irregular and heavy periods (but very short 2-3 days), but my doctor said that it could be a thytoid problems, so I'm going to see a specialist very soon.  I hope that this kind of thinking will help at least some of you as it helped me.  Good Luck

Dorota - posted on 01/16/2009

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It works for you only if you really want it.  If you are not sure that you're done with having kids you will feel bad after the tubal litigation.  Many women feel so sad and bad after this surgery that they go through all the problems.  The worry and stress make them sick and feel all the symptoms.  That's what was happening to me, first few weeks I wasn't sure if it was a good choice so I started to feel many of the above described symptoms but then I said to myself that it was a good decision.  I didn't want anymore children, and I don't want to use any hormone pills or any other "devices".  It was the only choice for me.  And slowly all the symptoms disappeared except irregular and heavy periods (but very short 2-3 days), but my doctor said that it could be a thytoid problems, so I'm going to see a specialist very soon.  I hope that this kind of thinking will help at least some of you as it helped me.  Good Luck

Dorota - posted on 01/16/2009

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It works for you only if you really want it.  If you are not sure that you're done with having kids you will feel bad after the tubal litigation.  Many women feel so sad and bad after this surgery that they go through all the problems.  The worry and stress make them sick and feel all the symptoms.  That's what was happening to me, first few weeks I wasn't sure if it was a good choice so I started to feel many of the above described symptoms but then I said to myself that it was a good decision.  I didn't want anymore children, and I don't want to use any hormone pills or any other "devices".  It was the only choice for me.  And slowly all the symptoms disappeared except irregular and heavy periods (but very short 2-3 days), but my doctor said that it could be a thytoid problems, so I'm going to see a specialist very soon.  I hope that this kind of thinking will help at least some of you as it helped me.  Good Luck

Jennifer - posted on 01/15/2009

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My OB/Gyn made me watch a video on each of the procedures that she is going to be doing, then the computer printed out material and I had to sign and initial the papers. My doctor would not even do just the tubal on me cause it would make matters worse, she is doing the laproscope and scraping for Endometreosis, and the ablation (burning of the uterine lining) along with the tubal.

Maybe you should talk to a doctor about having the Novasure (ablation) done. This should help with your issues with bleeding and period like symptoms.

Marcie - posted on 01/15/2009

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See I never watched a video on it. I didn't even know there was a video on the procedure at all.

Jennifer - posted on 01/15/2009

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I was at my ob/gyn office yesterday and I had to watch a video regarding the Tubal Ligation since I am having it at the end of the month. The doctor (played by an actor) in the video discussed the side effects and many of your issues were addressed on there.

Amber - posted on 01/15/2009

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I haven't had headaches or more severe periods but since my tubal I have been battling depression and was recently diagnosed with Polycistic Ovarian Syndrome, which by the way causes major weight gain, hair where you don't want to see it and just hormonal imbalances in general. I work out and eat right and still can't seem to lose weight and have now been put on Metformin for that. I am the first to tell women to have their husbands get the vasectomy, because the price we pay is very high.

Marcie - posted on 01/14/2009

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Headaches suck. I think that is one of the most painful things for me. I've been to the emergency room i swear about a hundred different times becuase of it. I've been stuck in tubes and xrays and all that. I just want to feel normal again. That's all I want.

Kim - posted on 01/14/2009

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Thank you so much, Sabrina -- I'm happy to see that there are doctors out there that ARE willing to accept that there might be something to all of this. I'm going to give my body some more time to heal, afterall, my son is only 10 weeks old, but if everything keeps going the way it's going, I'm definitely going to my OB. He's a fantastic doctor and I'm hoping he's willing to discuss the possibilities as well. And, just a side note, as I write this, I have a raging headache :). Sigh ....

Shelley - posted on 01/14/2009

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Ladies, thank you so much for all your postings. I was planning on having a TL next month but after reading all of your problems, I have changed my mind and am not having it done. Again thank you so much!!! I had no idea about any of this.

Marcie - posted on 01/14/2009

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Ya see that wouldn't be the case for me either. Cuz I was hardly ever on the pill. After I had my first son I started taking birth control pills and kept having really bad headaches. So they told me to stop taking it for a month to see if the birth control would be what was causing it. Sure enough the headaches stopped. They tried me on two other forms of birth control and the headaches would just return. So I havent taken birth control pills for years because of it. So I just dont know. All I know is all of this interfears with my daily life and it sucks and i just want to feel normal again!. Thanks for sharing the article with me though!

Lisa - posted on 01/14/2009

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http://women.webmd.com/features/getting-...



 



I found the above article interesting.  I know in my case it could be true.  I had been on the pill from the age of 19 when I got married. 



 



I'm sorry you are having so many problems and I hope they can help you find a solution.  Being in pain is never fun.  Good luck to you.

Marcie - posted on 01/14/2009

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Ok and i missed your last post, sorry. I know it wasn't premenopause or what not. Like i said i was pretty much fine and normal before I had my tubil ligation. So therefore that is the only major change in my life that happened that would cause all of this for me. But also when they did my tubil only one of my tubes is clipped and the other is stitched. I cant' exactly remember why that is.

Marcie - posted on 01/14/2009

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That's all fine and dandy. And I'm glad you said something. But I was not couciled the way I should have been couciled. And yes every surgery has its risks but in my case I wind up with all these problems after I had my tubil. I think there is way to much of a coicindence for it not to be it. Before I had my tubil I was fine. Had no problems at all and them Boom all of a sudden im like this. So i am pretty much quiet certain that it was because of this. That is the only thing i can think of when all these things started for me. And Im not sayin anyone is just trying to fill their pockets with money. But there are doctors out there that do. And I have seen it personally.  And I am not goign through premenopause I am only 26 My mother didn't even start that early and neither did her mother.

Sabrina - posted on 01/14/2009

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You are right, the symptoms are highly suggestive of a perimenopausal woman. I don't know of any link between TL and the onset of menopause. There has been cases of premature menopause brought on after a hysterectomy (if the ovaries are damaged in the course of things) or after endometrial ablation (or Novosure, which I believe somebody posted about).
All I can think of, is that a large proportion of women who undergo ligation, will be in the >35 age group, and this same group of women are at risk of perimenopausal symptoms, which may seem to come on suddenly when your periods resume after having a child. Obviously, Marcie isn't in this group of women as she is too young. I don't know what may be causing your symptoms Marcie, and it may well have something to do with the ligation - it's just at the moment, we don't know of any link, neither do we have any physiological explanation to link the two, nor do we have any treatment that we know will work for Post Tubal Syndrome.

Mary - posted on 01/14/2009

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Thank you, Sabrina, for an expert opinion on the subject. I still think that the list of symptoms posted are *very* similar to perimenopausal symptoms. (In fact, the link I posted earlier of symptoms is almost identical to the list posted above.) Perhaps I can ask a question: In your professional opinion, is there a link between TL and perimenopause (which can start at least 10 years before the onset of menopause, correct)?

Marcie - posted on 01/13/2009

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All of my symptoms came after i had my tubil ligation. Besides the mino aches and pains everyone gets Ya know. But all this combining up together just makes life miserable. I had feeling this way, and im tired of feeling so crappie all the time. Im trying to find a different doctor that will actually listen to me. The one i got now just plain sucks!

Lisa - posted on 01/13/2009

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Mine doesn't seem as bad as some on here.  It is different and very uncomfortable at times.  I would be afraid to go in again and have it reversed.  It is interesting to read about the rapid heart rate.  I already was on medication for a rapid heart rate before the tubal and I am having issues again.  I just thought my meds needed adjusted but again reading here makes me wonder.

Marcie - posted on 01/13/2009

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See I cant go on birth control because of my high blood pressure so that is out for me. And i really dont want to have a hysterectomy, so the reversal is going to be my only option. If its going to make me feel better then I'm all for it!

Lisa - posted on 01/13/2009

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I had my tubes tied in Nov. 2006 after the birth of my 4th child.  I am 42, have high blood pressure and tend to get pregnant very easily so a tubal seemed like the perfect solution.  I didn't get periods right away because I was breast feeding but now they are very painful, very heavy and are coming every 3 weeks.  I hate it!  Back in the summer I had a few months that the pain was so bad it was worse than labor pain.  I honestly thought I was starting to go through menopause but now I'm not so sure.  This board is very interesting.  Thanks for posting.

Sarah - posted on 01/13/2009

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I didn't want to get a TL done after my 2nd child because I am only 27 and was not ready to "be done" even though we don't think we are going to have any more kids because I am a diabetic and am on insulin when I am pregnant. I had a Mirena IUD put in and love it. I no longer have periods. I might spot for a few hours one day a month and that is it. I had horrible periods when I was a teenager, super heavy and cramps so bad I would vomit. I said that after the 5 years of the IUD he would get fixed if we didn't want anymore kids but I think am going to have another Mirena placed. My mom and aunt both started perimenapause in there late 30's early 40's so I know I will probably go through menapause early also. so I only will have to have 3 or 4 IUD's. After reading this I will not have a TL

Kristy - posted on 01/13/2009

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I had the same symptoms after I had my tubal.  My son will be 5 in a couple of days.  I am already anemic and bleeding that heavy made it so much worse.  I got so fed up with it that I had a Mirena IUD placed last June.  I love it.  I no longer have my periods or migraines or any of the symptoms I had with my severly heavy periods after my tubal. 

Jennifer - posted on 01/13/2009

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My ob told me that she does not recommend TL for women who already have bad periods because it will actually make them worse, even those who didn't have bad periods will start experiencing them. I am scheduled at the end of the month to have the ablation done and my ob/gyn is also going to do the TL.

Jennifer - posted on 01/13/2009

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I knew it! I had a TL almost five years ago and still have periods that are like the first 20 minutes of "Saving Private Ryan" but they last for a week and a half.(Sorry for the graphic descr) I never had cramping until after the surgery and it all makes so much sense now! Is there any documented cases of relief from these symtoms after the reversal?

[deleted account]

Thank you so much everyone for all the info! I was scheduling a TL for next month and now I am going to think twice about it. I never knew there could be so many side effects from this. Thank you, thank you, thank you!

Jenifer - posted on 01/12/2009

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This is an extremely interesting conversation. I gave birth to my fourth child in September of 2007 and my husband and I have been "discussing" who should get fixed ever since then. I am only 29 and not ready to say that I am done having kids and he is just chicken. I was only worried about going into a depression afterwards, kind of like Mary said about seeing the people around you having more kids and jnowing that you will no longer be able to have anymore. After reading about all of the things you are all talking about, I think I have a little more "discussing" to do with my husband. As a mother of four very active kids, I couldn't handle all of the things you are all going through. I wish you all the best of luck in finding a doctor that will listen and research your problems a little more.

Mary - posted on 01/12/2009

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Marcie, here's a link to a page with the symptoms: http://www.project-aware.org/Experience/...



From what I've read, perimenopausal can start at least 10 years before the start of menopause. I agree that 26 is WAY too young for perimenopause (in my case, I was 34 1/2 years old when I had mine done.)

Marcie - posted on 01/12/2009

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Maybe there is, but i think its way to much of a coincidence that all this started happening after i got my tubil done. Unlike you my doctor didn't coucil me for months or anything like that to make sure i knew was i was getting myself into. Yes I got my tubil for a reason but i sure as hell didn't want to feel like this afterwards. I think there is to much of a coincidence that all this began for me after my tubil. And I am only 26 years old so how would I be having menopause symptoms

Marcie - posted on 01/12/2009

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Maybe there is, but i think its way to much of a coincidence that all this started happening after i got my tubil done. Unlike you my doctor didn't coucil me for months or anything like that to make sure i knew was i was getting myself into. Yes I got my tubil for a reason but i sure as hell didn't want to feel like this afterwards. I think there is to much of a coincidence that all this began for me after my tubil. And I am only 26 years old so how would I be having menopause symptoms

Marcie - posted on 01/12/2009

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Maybe there is, but i think its way to much of a coincidence that all this started happening after i got my tubil done. Unlike you my doctor didn't coucil me for months or anything like that to make sure i knew was i was getting myself into. Yes I got my tubil for a reason but i sure as hell didn't want to feel like this afterwards. I think there is to much of a coincidence that all this began for me after my tubil. And I am only 26 years old so how would I be having menopause symptoms

Mary - posted on 01/12/2009

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Marcie, I was counciled by my doctor several times in the months leading up to my delivery and TL. He wanted to really make sure that I knew what I was getting myself into (which I did) and even made me talk with his nurses, to make sure I really wanted this done. I know it took quite a bit of convincing to show him that I knew it was permanent and that was what I really wanted.



Also, this list bears a striking resemblence to the list of symptoms that menopause and perimenopause brings about. Is there a link between TL and the onset of menopausal symptoms? I'm really curious now.

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