help i need some info

[deleted account] ( 5 moms have responded )

Hello this is a concerned gma so my grandaughter started to have siezures a little after she was born. But she was still fine she responded to u when you talk to her shed look at you but ever since they put her on meds she never was the same she is now almost 2 and dosent DO ANYTHING CANT STAND CANT SIT UP CAN HOLD HER HEAD UP SHE DOSENT EVEN KNOW HOW TO EAT FOOD ALL THEY GIVE HER IS A MILK FOR PEOPLE WHO HAS SIEZURES ehich she is allow ed a certain amount This is sooooooo fustrating now i believe if she was not on those pills that they give her she wuld have a chance of walking talking etx oh by the way she still has siezures reguardless of taking meds tjis is whats so fustrating i feel if my son and his girlfriend knows how to handle her when having a siezure while on meds im pretty sure we can handel them without meds

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Chana - posted on 04/03/2015

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I am sorry if I offended you that was not my intention. I was trying to be nice but I really think you are looking for someone to lash out at because your granddaughter has a medical problem and you don't know what to do about it. You love her and I am sure it is heartbreaking. You need to understand that seizure meds to not completely eliminate seizures. I know this because my niece has epilepsy and has been on seizure meds pretty much her entire life and until about 1 year ago she would still have seizures and she is 17 years old. She had her meds checked and regulated at least every 6 months. It is not an easy situation to deal with but taking her off the meds is not the solution. Have you thought about taking her to a neurologist? Just a suggestion.

[deleted account]

She still has them on the dam meds lady anyway this is not what i expected of this i will no longer like your response nor comments thank you

Chana - posted on 04/03/2015

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She wasn't FINE as you put it she was having seizures. That's not fine in my book. She needs her meds evaluated, possible changed. She should be getting some type of occupational or physical therapy to strengthen her muscles so that she can use them. You don't know how many seizures she would be having without the meds. Most seizure meds will not totally eliminate the seizures it merely makes them controllable. I hope you find some answers but lashing out at us is not the solution. Shawnn was merely stating some facts.

[deleted account]

How is this helpful this is just plain rude did you read what i said SHE WAS FINE UNTIL THEY PUT HER ON THE MEDS EVER SHE HAS GONE DOWN HILL NOW I DIDNT POST THIS TO HAVE RUDE PEOPLE COMMENT

♫ Shawnn ♪♫♫ - posted on 04/03/2015

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And are you a physician specializing in seizure disorders? If not, then stop self diagnosing your grandchild.
If the seizures are not under control, then medication adjustments need to be made, but to suggest taking a person with a seizure condition OFF of maintenance meds is asinine in my opinion.
Suggest to your son that he and his partner have a med review done for their child.

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