HELP ! Unnecessary surgery done. Wrong diagnosis. Undescended testicle

Ella - posted on 07/11/2014 ( 2 moms have responded )

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My son was diagnosed with one undescended testicle when he was 1 month old. We were told to wait until he is at least 1 year old and see if it would descend on it's own.  At14 month he had ultrasound which confirmed presence of testicle in the groin area. At pre assessment 5 month before the surgery surgeon couldnt feel testicle in groin. But still decision was to perform a surgery to bring the testicle down. After 6 month he had the operation done. But unfortunately there was no testicle found in his groin area.???.Then surgeon told us that testicle may be in his abdomen or may not be present at all. If the testicle is in abdomen he may need another 2 operations! First is to find the testicle and second to bring it down if present.
I believe that my little one 20 month at the time had to have an unnecessary surgery! & general anaesthesia! !!! If diagnosed properly (that testicle is in abdomen) in the first place he wouldnt have to have that surgery. Or if the testicle isn't present he would not need any surgeries at all. Another bad thing is that my little one is put down on another waiting list for new assessment and then surgeries.  It will take ages. I wouldn't mind waiting but the longer testicle is left understand there more chance of damage to it. Lots of side effects possible canser, infertility........
I feel awful putting my little one though this especially the unnecessary surgery that he had just done..... And how this all waiting may affect his future. Please any advice? Did anyone else have similar problem?

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Ella - posted on 07/12/2014

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Thanks for your reply. Our surgeon that diagnozed my little one didn't operete him. On a day of our surgery we find out that another surgeon is going to operate. After the procedure he told us that this was first time in his practice that he couldn't find a testicle. He performs this kind of operations on a daily basis. That's why I got worried.

Chet - posted on 07/11/2014

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I'm not sure the first operation was unnecessary. The doctor told you that exploratory surgery is required if the testicle is in the abdomen. Confirming that the testicle wasn't in the groin made certain that the next step, something much more invasion, is truly necessary.

This isn't a medical emergency. Although there is an increased risk of testicular cancer as an adult, or of infertility, most affected men don't get cancer and most are still fertile. You could get a second opinion, and hopefully other moms will have some first hand experience to share, but try not to worry too much. Your son's treatment plan sounds completely reasonable.

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