Harpreet - posted on 04/29/2014 ( no moms have responded yet )
My baby gir; was born on 15th April'2014 and was diagnosed with this condition. She suffered a few seizures and eyes rolled back into the head. i am told that all this is a part of hemimegalensphaly. And just about when she was going to get discharged, she suffered a seizure again, due to which she has been rehospitalised and she is on intravenous liquid supply.
I am in india, where doctors dont really have adequate knowledge about this condition. Dear moms,Please respond and do let me know your experiences and how many successful surgeries have taken place...I really need to speak to someone who knows something about this disease..