hemivertebra/scoliosis

Tracie - posted on 10/25/2009 ( 5 moms have responded )

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I am interested in hearing from other mums who have a child with hemivertebra/scoliosis, a congenital spinal condition. My son was diagnosed with it at 3 weeks old. He has quite a curve in his spine and leans to one side. He is also missing a few ribs and therefore has a shorter trunk than most babies. I would like to hear from other mums who have a child with the condition.

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Liz - posted on 05/24/2012

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Yes I did thanks. Just revising for Uni exams til Tuesday. Then I will respond! Thanks so much for your email. It was very encouraging. Hugs

Liz - posted on 05/22/2012

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Hi Tracie & Naomi. My son also has a hemivertebrae at the L4 level. I would prefer to discuss off this forum as I just googled and found your post.I really hope your sons are going well now. Liz.Brooker12@gmail.com Regards Liz

Tracie - posted on 08/04/2011

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Hi Naomi, nice to hear from you. My son was diagnosed at 3 weeks old and is now 28 months old. He is treated at The Royal Childrens Hospital in Melbourne Australia. He is on the waiting list for surgery. It looks like he will be getting a phenix rod attached to his spine at some stage. He will be the youngest child in the world to have this particular rod inserted. His specialist says it will be a challenge and has a theory about how to help his condition but no one has never attempted the operation on a child as young before. His hemivertebra has presented itself rather early and he has a 89 degree curve in his spine. How was your sons condition picked up? Does he have hemivertebra as well as the scoliosis? I have never met or heard of anyone else who has a child like my little boy. How are your specialists planning on treating you little man?? Where is he getting treated??

Naomi - posted on 08/03/2011

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hi my son also has this he is now 9 months old what hospital is your child being seen at?

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