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Sherrie - posted on 06/17/2009
I have a 3 yr old daughter with type 2 von willardbrands disease. Like hemophelia, it attects her ability to clot. Her father has it as well as it is a hereditary disease. I understand your fears, but the only thing that you can really do is keep a watchful eye. And make sure that the medicine, if any, if alway nearby. Her grandmother kept my fiance in a "bubble" when he was a child and he resents it to this day. As you son gets older, teach him. My daughter knows that she is different from all the other kids, but we still allow her to live. She knows the signs and symptoms of a bleed and when to tell us and it really helps!
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