Hereditery Angioedema PLLLEEEEASSSE HELP!!!!

Cynthia - posted on 04/20/2011 ( 1 mom has responded )

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I am desperately seeking someone with the medical condition Angioedema. Pronounced "anjeeo- ed eemuh" My younger sister is 22 and has had this condition for several years. Lately she has been having horrible flare-ups and has been to numerous hospitals, numerous specialists and basically just keeps getting told they're not used to dealing with her condition and dont know what to do to help her. Her brain is swelling and blurring her vision, her insides are swelling causing her horrible pain. She is fastly apporaching major depression because she feels there is no hope of her ever getting help or feeling better. I am begging you, if you have this condition or know of anyone that has it, please contact me. We would like to ask some questions about how you deal with flare-ups, what medications you take, what type of Dr you see for the condition etc. Basically anything at all that would be helpful! Thanks!

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