Hi my baby Girl is 4 months old and has been diagnosed with chromosome 16 deletion i was told this is very rare and and only 6 people have it in the worldand that they dont have much research on it my Baby has bilateral talipies and has had 2 holes in her heart with is now fixed she is also vommiting alot and losing hair could anyone give me any advice on this deletion i would apreciate it? x

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