Beverly - posted on 02/22/2015 ( 2 moms have responded )
I am the mom of a 27 year old daughter with Rett's Syndrome. When Mallory was diagnosed at 2, the disorder was just being recognized here in the US. Most girls were misdiagnosed as Autistic. I had sooo many questions and I went through a period of deep depression.When would I lose her? Did I do something to cause this? Why my child? Today, we have come out the other side of the darkness of this disorder, and now I can honestly say, we are both happy again. Retts doesn't define who Mallory is or what her quality of life will be. Hopefully I can be a resource for moms, like I was, who have young children with this disorder and feel overwhelmed. I needed hope, and I can give that to them. I have been though it all and so has Mallory. We help ourselves when we share our experiences. I would love to help anyone who is going through this.