Carmen - posted on 06/27/2016 ( 3 moms have responded )
On May 9th I took my daughter to the doctor because she said she had a stomach ache and sore throat. They checked her for strep and decided to do a urine test just in case she had a UTI. Strep was negative but she had keytones (not sure how much) and sugar in her urine. Then they checked her BG and it was 225, it had been about an hour and a half since she had last eaten. They told me that was an automatic Type 1 diagnosis. She also had only gained about 2lbs since the fall. I was devastated!! They sent us down to a Beaumont hospital right away and told me and my husband to pack for 2-3 days because we would be down there learning all we needed to know about being Type 1. We got down there and they ran a bunch of tests, checked her urine and BG. The doctor said he could smell it on her breath. The thing is Every blood test and everything else done came back Normal! They called a pediatric endo and he said her numbers are great, she can go home. We were exhausted by this point so we made the 2 1/2 hour drive back home at 1am. The next day we went back to her PCP and she set us up to speak with a dietitian and a diabetic specialist. They gave us a monitor, test strips, insulin, everything that we would need. They also did more blood tests. I actually never heard back from them so I guess everything was fine (I need to call to see how it turned out, I have no idea what her A1C even is) We have her on a low carb diet and did just what they said to do. She has had many lows under 70 and one time only 49. And ONLY 1 time was she a little high, her BG 3 hours after eating was 159. They said to give her a half unit if 150 to 199. Instead I had her drink a bunch of water and run around for about a half hour outside and it came down to 79. It's not that I want my daughter to be type 1 but what the heck is going on? Is this the "honeymoon phase"....was it a misdiagnosis? I just can't see it being diagnosed wrong since she had only gained 2lbs since fall, had the sweet smell on her breath, had keytons and sugar in urine and a high BG reading of 225. Can anyone give me any info as to what is going on? Sorry this is so long but I wanted to give as much info as possible!!