I have a 10 month old whose had a lot of medical problems since birth and I still dont know how to cope! I need some advice!!

Tabytha - posted on 09/04/2013 ( no moms have responded yet )

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Early November(A month after he was born) sometime around November 1st we took Noah into St. john pediatrics because noah had developed a serious cough. We also noticed he had a lot of reflux which at the time we thought was normal. After bringing Noah in to the doctors we discovered he was underweight and possibly had an infection. We were told to go to the hospital. After arriving we found out my son had para influenza 3 and also was in critical condition with Failure to Thrive. After aproximately 2 weeks of testing and with limited answers it was decided he would go on a Naso Jujastami tube also known as an NJ tube that with hope in time his reflux would be in control with age. We were then discharged after a day or 2 from the hospital. On Dec 10th we were admitted back to the hospital because Noah had pulled out his NJ tube. The following morning we were discharged. Then we had to go right back in bcuz Noah had extreme Nasal Discharge with a bad cough. They found out he had Bronchilitis. During this time it was also discussed that Noah would need a Nissen Flundoplication w/ a G-tube. Dec 31st we were admitted again into the hospital bcuz Noahs NJ tube was clogged and then were discharged the following day. January 5th Noah got over the Bronchilitis. January 14th he had another blocked NJ tube then discharged the same day. January 29th Noah was admitted for surgery for his surgery(Nissen Flundoplication with a G-tube) The surgery was a success but something was off Noah still had congestion which had previously been blamed on the NJ tube and all the episodes of him being sick. The doctors believed it would go away on its own and at the time they did not believe it was in his lungs. Which by the way it hasnt he still has the bad congestion where he still cant eat anything by mouth and hes still on the G-tube. They said he's probably not going to be able to eat by mouth until after hes a year old. They said that because Noah has been aspirating on his mucas where it has permanently damaged his right lung. Right now hes on medication that we put through his G-tube, breathing treatments and pattings. Ive had no patience... and im easily stressed out... Is that normal? To feel like I dont know what to do with him? All of his medical makes it hard to have a normal life? I need some advice on what to do and how to cope with it better. PLEASE!!!!

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