I just found out my baby may have Downs Syndrome

Molly - posted on 05/10/2016 ( 7 moms have responded )

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I am expecting Nov. 1, my first child and I just found out that my blood work show that he/she may have Downs Syndrome. I don't know what to do or how to feel? My doctor is going to do a special ultrasound to check something in the neck and then maybe to an amniocentesis. I don't know if I should do the test or not. I am scared of hurting the baby. I have had two miscarriages before this and I don't want to lose this one. So nervous!

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Molly - posted on 05/14/2016

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i have a few questions; what is a troll, what are the black magic postings about cause there is a lot, where can i post to get responses cause it seems the only answers are the spanker mom groups and i am not in agreement with that. my baby is not even here yet! i am so nervous, i am expecting twins and i only babysat in high school. i have no clue what i am doing. my mama and papa will help for sure and derek will take some time off too, but he knows less about babies than i do.
i gotta admit one thing becasue i feel really guilty about this. so, thursday when we found out it was not Downs Syndrome but my dates were off and it was twins... i was glad, and i am really glad. there is a tiny part that feels like if it were Downs Syndrome at least it would be just one baby. maybe sickly but just one. i can hold one baby, how will i hold two? what if they both need food, diaper change or are just crying? what do i do then? ignore one of them? i feel really lost. everyone (derek, my mama n papa, and derek's family) all tell me i will be ok. my sister and 2 brothers don't have kids.
is this normal to feel like this? thankful, really i am i know so many women would trade places with me, but i am still really scared. if i could have had a one baby birth first, and then twins--at least i'd have a clue where to start. the only ting i know for sure is what the kids will call their grandparents, mama abi, papa jim for my parents, grandma and grandpa for derek's. how sad is that? they dont talk the day they are born so who cares!

Ev - posted on 05/14/2016

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Congrats on twins. You pretty much do the same with one as with two. You will just have to learn to balance it out. It does take time. I had a difficult time with what to do with a son after seven years of a girl. I learned.

Molly - posted on 05/14/2016

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so i put this somewhere else but my labs ere off because of my dates being off (i guess with the miscarriages my cycle was weird AND there are two babies) they share a placenta and are in the same sac so they are identical for sure. the best part of all of this is derek is so proud. i feel more relived that i finally did not miscarry this pregnancy, and then i get nervous about all of the things i have no idea how to do with one baby let alone two? advice wanted!

Molly - posted on 05/11/2016

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that makes me feel better. i know i will be okay no matter what but i really want to give my husband a healthy baby. he swears he is not worried and believes this is the child we are meant to raise, healthy or not. I have to stop thinking the worst, i won't even know for sure tomorrow, unless the scan they do on the neck really shows one thing or another. we agreed to not do an amniocentesis, as we don't want to risk the pregnancy after two miscarriages, and we will have the baby no matter what may be wrong.

Ev - posted on 05/10/2016

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I had a similar circumstance with my son. They found some cysts in the brain area. For weeks they held us at bay before we could find out if it meant anything or not. After four weeks I made them do the second ultrasound because some of the worst case possibilities had been looked at as the end results. But I knew deep down that he was fine. And he was. He is a normal 19 year old young man. But I prayed for a miracle. I just wanted him healthy.

Molly - posted on 05/10/2016

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Thanks i just got the labs last night and i am not even sure he/she has Downs Syndrome. I think the scan checks something in the neck and that will be more a for sure answer. I was so thankful to have made it so far and then find out the baby may not be healthy. I go in thursday morning and my doctor is going to read the scan right away so we will have an idea. I will just try to prepare myself for any news and i know i will have this baby no matter what is wrong with him/her.

Ev - posted on 05/10/2016

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I am sorry to hear this might be the case. They have advanced so much with medicine these days that maybe a conversation with the doctor could help ease your mind a bit on what is done for all these things. As for having a Downs child, its not easy but it can be handled. I worked with special needs kids for over 10 years. The children with Downs Syndrome are so sweet and loving. I enjoyed each that I worked with. I hope things go well for you and that you find your baby is healthy and strong.

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