i just wanted to say this is the best thing on facebook,,, a big thank you

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Ashley - posted on 07/15/2012

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How did they diagnose your son? I am being sent to sick kids with my daughter, the MRI showed possible Leukodystrophy and now they want to run more tests to either confirm it or rule it out. This is the most frightning experience of my life.

Lucette - posted on 02/11/2009

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my son brandon was diagnosed with ATYPICAL LEUKODYSTROPHY AT THE AGE OF 4 MONTHS,, THIS DISEASE IS AFECTING HIS BRAIN AND THE MYELEN,,, DIAGNOSIS NOT VERY GOOD,, ANY INFORMATION THAT THE CIRCLE OF MOM'S HAS TO OFFER WOULD BE GREATLY APPRECIATED,,,



HE IS DEAF NOW IN ONE EAR,, EYESIGHT HIS GOING,,,, AND ALL PARTS WILL STOP FUNCTIONING,, AND HE WILL DIE FROM THIS HORRIBLE ILLNESS......  I STARTED A GROUP RE: ATYPICAL LEUKODYSTROPHY,,, FOR PARENTS THAT ARE GOING THROUGH THIS,, NO MONIES INVOLVED JUST TO SHARE SOME INFORMATION,,, AND IT IS NICE TO TALK TO SOMEBODY,,, AND LET IT ALL OUT,



GOD BLESS EVERYBODY,,,,,

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