i lost my baby girl due to a birth defect of cdh any one lost a baby due to this birth defect

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Sorry for your loss. I have not lost a child myself, but a friend of mine lost her daughter at 10 days of age with this condition. Her lungs were not developed enough for them to perform surgery and her life support was removed and she quietly slipped away. Have you sought out a support group to help you through your grief? My friend has been in contact with CDH support groups and she still has contact even 7 years later which she gets some comfort from. Consider doing the same as it really does help to have contact with people who understand what you have been through. My heart goes out to you and your family. Bless your little Angel Baby.

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Torie - posted on 01/11/2013

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just wanted to update you.. we lost our daughter in August at 4 hours old to CDH.

Torie - posted on 06/02/2012

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Thanks Katherine x
I had never heard of it until we went for a 4d scan at 18 weeks (now 23 + 4 days) and found out.
It is a very scary time but at least er know and can be prepared for when she is here. She will be delivered at Liverpool Womens Hospital and if that goes well, transfered to Alder Hey Children's Hospital.
I wish there was something we could do now to help, but the only thing we can do, is or me to keep her safe in my mummy nest until we meet her xx

Love and hugs to everyone xx

Katherine - posted on 06/02/2012

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I hope your baby is ok too Torie. I have never heard of this condition.....I have had a miscarriage but never lost a child.......sending good vibes!

Torie - posted on 06/02/2012

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We are pregnant after 4 years of trying, and our baby has been diagnosed with CDH.. her heart looks strong but her lungs are very squashed and may not be developed enough when she is born. We pray everyday, for our baby, and every baby born with CDH.
Stay strong xx gentle hugs for you xx

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