I suffer from fibromyalgia and chronic fatigue.

Tina - posted on 04/27/2010 ( 11 moms have responded )

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I'm in always in pain and have a constant headache. I have 6 kids (18, 14, 11, 9, 5 and 2.5) and have no energy or strength to do anything. I push myself everyday to get the things done and help my kids but at the end of the day i'm just wiped out. I refuse to take the handful of medicines the doctors perscribe me because i'm afraid of all the side effects. Does anyone know what I can do to help ease the pain without taking a whole bunch of narcotics?

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Kim - posted on 04/27/2010

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the alternatives. I do take Lexapro for depression which seems to help alot too.

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Petra - posted on 01/05/2011

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Hello! I'm not sure if anyone is going to read this since it has been months since the last discussion. I just wanted to add that seeing a pain specialist (contact your local hospital anesethesia department ~ the people that put you to sleep before surgery). Anyway I have started to see a pain specialist and have tried 2 different meds specifically for Fibro and have found that Lyrica (fairly new out) works well for me. I take 100 mg 3x day. The other med I have started was oxycodone (Narcordic). I started with 5mg up to 4x a day with definate dosage 1st thing in AM and then again in PM before bed. I found it wasn't quite doing the trick so my Dr. upped the dosage to 10mg 3x day with definate dosage in AM and PM. The combination has really helped me. But most definately don't be afraid to ask your current Dr. or healthcare professional to suggest another caregiver if they aren't meeting your needs.

Iridescent - posted on 04/27/2010

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I have this as well. It's not fun, and some days it's very hard to get up. I have 5 kids, 11, 8, 3, 3, 2, and all have a lot of health needs which makes it harder.

I tried yoga and was unable to do it because of all the balance things. Pilates is actually helping me though! Also going outside when it's nice, working on a project (right now a swing set) or reading. I don't take meds for it unless it's unbearable.

Kate CP - posted on 04/27/2010

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My mother has this as well. The only thing that helps is the medication. You may not even have side effects to the drugs as not every one responds the same way. Try the medication and give it two weeks. If at the end of two weeks it doesn't help or it's not working the way you want talk to your doctor again. You've been given the solution but you refuse to use it.

Brianna - posted on 04/27/2010

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Have you tried any alternative medicines since being diagnosed? I see a naturopathic Dr. that does kinesiology, acupuncture and is also a nutritionist. I have been dealing with pain since having my first child last August and she has been helping me for the last few months and i have been a lot better. There is a link between pituitary/thyroid issues and Fibro. If you want more info please feel free to message me and I'll give you any info I can. Good luck!!

Joey Elizabeth - posted on 04/27/2010

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Tina I am glad I was able to help. You "SHOULD NOT" be with a doctor that is not willing to discuss treatment plans with you that is what they are there for. I am very particular about my physicians (and believe me I see a handful of them). 1stly they don't talk, I don't go back, this is my health "WE'RE" not discussing here. Do not like doctors w/GOD syndrome and some doctors feel they should not be questioned by their patients. HELLO! I am doing you a service by paying your outrageous BILL!!!!

Yes I definitely recommend going to see another physician, your relationship w/your doctors is like a marriage, should be very close knit, they are after all prescribing medications (or not) and you have the right to question their every decision. Ke

Keep me posted I would like to hear how your progress goes.

My journey with the fibromyalgia has been lonely as I haven't met anyone else personally has it. I was deemed permanetely disabled (been oow since 5/08) and my progress has been slow...and the fact I don't sleep doesn't help (lucky if I get 6hrs in), I usually fall asleep around 5-6am up by 10am....today I lucked out and slept until 11:30am but I was interrupted by my asthma flaring up. I've been on 3 different sleeping meds and nothing works and you definitely need rest as you have a family to take care of. Lucky for me my baby girl is 18 and after much arguement (in which I lost), she looks in after me and helps out the best she can (I have a weight restriction, not allowed to lift anything over 5lbs as I have weakness in my hands). So definitely look into a new doctor and review their background your insurance should provide that information, it is your right.

I wish you lots of luck in your journey..
Joely :)

Kim - posted on 04/27/2010

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I am sorry to hear of your constant suffering. I will keep you in my prayers. I have Chronic Fatigue Immune Dysfunction Disorder and Post Traumatic Stress Disorder so I know whay you are feeling. Then, it is compounded by depression because your so depressed that you feel so bad your cranky, irritable and your quality of life stinks. Sound familiar. I am feeling a little better with these things: Prayer!!! positive thinking, lots of vitamins (I like Womens Multi from GNC. Protein seems to make me feel good for a while, I just fear gaining weight because of it, exercise (even though it sucks-it helps) and eating as healthy as possible. Seems to help a little more than

Tina - posted on 04/27/2010

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Thank you all for you responses! I'm just so tired and don't know where to turn for help. Joey.... I had a wonderful doctor that had talked about "savella" but it wasn't yet out. My husband switched jobs, then insurances and I had to see a new doctor and he isnt nearly as helpful as my previous doctor!! Whenever I try and mention any meds he looks at me like all I want is drugs. I've tried telling him I don't want a bunch of medications just 1 maybe 2 to help me ease the pain. I also suffer from chronic insomnia and I hate it!! I'm looking for a new doctor now and I will mention savella to him/her. Thank you! I had forgotten all about that and to me its worth a try!

Joey Elizabeth - posted on 04/27/2010

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Hi Tina:
I was diagnosed w/Fibromyalgia, along w/diabetic neuropathy (after going through a year of testing to find out what was wrong with me). It took a trip to a neurologist who interned recommended I see a rheumatologist who diagnosed my Fibromyalgia right away. Although I was happy to find out about all the pain I was experiencing (as if the neuropathy isn't bad enough by itself) it was still a minute before a medicine was prescribed that really helped with the muscle pain. In addition to the two above I also have chronic fatigue but I suffer from chronic insomnia so sleep is next to zero for me. I shyed away from narcotic treatment right away as those kind of meds make me physically sick, so that wasn't even a consideration for me.

Now please be advised aren't a handful of medications out there to treat Fibromyalgia as a lot of doctors "DO NOT" like to recogonize it more or less treat you for it. Having worked in Short Term Disability claims this is a fact as even disability carriers don't like to approve time off for it because it is a condition that has various ranges and cannot be disproven (other words it can be faked.)

The first medication I was prescribed was Cymbalta (this is a depression medication but this was the first and only medication to treat Fibromyalgia for a long time) started with a lower dose to almost up to the maxiumum dose allowable but this didn't really help ease my muscle pain. Then a few months ago my neurologist informed me of a new medication which had just came out on the market and said I should discuss it with my Rheumatologist he gave me a sample pack to take w/me on my next office visit. The name of the medication is "Savella" I am up to 100mgs twice a day and let me tell you, that although I still have pain, it is not at the level in which it was before I started the medication. It has been a bit over a year since my diagnosis and the progress has been slow but you will notice a difference. Didn't help me sleep but it has enabled me to feel somewhat better. Excericise is also key, I haven't started a regimine as of yet (other factors) but I have been encouraged to walk (start out slow) as I have been informed this does helps.

I wish you lots of luck, Joely :)

(if your wondering why I gave you so much information I didn't think just telling what I was taking would be sufficient enough a bit of background info is always better)

Naomi - posted on 04/27/2010

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I've read that exercise can help a bit, but you should check with your doctor about that. You'd have to gradually introduce a few minutes of walking to get started or light physical therapy. If nothing else, it might help you sleep and cut down on some fatigue that way.

Nichole - posted on 04/27/2010

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Wow! I'm impressed. I also have chronic fatigue and Fibro. But I only have 1 child (7 1/2 months) and I'm so wiped out after caring for him. I've been trying hard to find something to help with the pain and energy, but I haven't found anything. I also won't take narcotics. If you find something the helps, I'd love to here about it. If I find anything I'll let you know.

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