Tami - posted on 07/12/2014 ( 1 mom has responded )
I have a son who is now 7 months. He is basically doing everything any normal baby would be doing. He even started sitting at 6 months. He is still a little floppy compared to babies without DS. His features are very mild and it rare that anyone knows he has DS. We found out two days after he was born. I am so frustrated that it seems that research and a cure for DS is not a priority. I feel like people just accept these kids as happy and that they can have a full filled life. Of course my son will! But....I still want any therapies that could give him a higher IQ,could make him able to have a family and children etc.etc...I feel like DW is like how polo used to be....someday there will be a cure. And there will be a solution besides abortion. I am also frustrated on the low numbers of research on milestones. Most books authors have only worked with for case studies less then 50 kids...how can this help us find a cure? I love my son but I believe in science. I know in Maruland they have found a way to take the extra chromosome in mice....does anyone know of a good vitamin therapy? Mineral therapy? Or something I can do now? I read there is a place in CA that has a regiment for kids and the diet actually improved IQ and the DW features. Big am not embarrassed of my son bit I believe in doing all I can to help him. I won't ever give up. On also sick of people falling on god. I don't believe he was born this way because of god. It is genetics.