Infantile Spasm

Priyanka - posted on 01/29/2014 ( no moms have responded yet )

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Hi my son Mihir was diagnosed with Infantile Spasm in his third month. His EEG was highly abnormal and confirmed bad form of IS. His MRI is absolutely normal. He was put on valproate for a month and subsequently followed with ACTH for 6 weeks but no improvement was observed. He was put on Valproate, Clobazam, carnisure and topiramate for two months which showed some improvement. Again frequency of seizures have gone up to 10 -15 in a day and at present doctor has added Sabril (vegabartin) with other medicines however there is no sign of improvement instead seizures have now increased. My son is a case of Trisomy 21(Downs syndrome) disorder and combined effect of all of this has severely hampered his metal and physical development. can any body help in this regard?

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