Infantile Spasms πŸ˜”

Suroor - posted on 02/12/2018 ( 2 moms have responded )

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Hello. I'm new to this group. Hope everyone is having a lovely day.
My baby is 11months old and she had her first attack of infantile spasms when she was 7mo. ACTH was tried at first, the spasms were subdued but they came back stronger. Now shez on Sabril and Topomax, spasm free since over a month, which is great.
Well She has had delayed milestones....her could only hold her head at 7months and has only just started to roll over. She doesn't babble at all and only hums. Teething normally and sits with support due to her constant rocking. She never reaches for any toys and has only started focusing and following with her eyes since a month. It upsets me to think if she'll ever have a normal life.
Any moms here who've experienced anything similar? I'm just worried how things will be in the future. My elder two boy 10 and girl 6 are perfectly normal kids with no cognitive mental or physical health issues.

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