Inflammatory Breast Cancer

Cori - posted on 01/20/2010 ( 7 moms have responded )

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My husbands Aunt (So what my Aunt in law?) just got diagnosed with Inflammatory Breast Cancer yesterday. she was the first person in my husbands family (besides my husband of course) that i really connected with and I love my Aunt Terri. I did some research on line and it seems that this type of breast cancer is particularly hard to spot, and hard to diagnose and when it is diagnosed, its all ready considered Advanced. I just am telling everyone that this is out there and i am looking for some positive stories (survival, happy endings etc)



I am having not only a hard time with the thought of such a loved family member having cancer but also having to go through the treatments. Losing her hair, being sick, not having the support from her immediate family (husband, mother, siblings) that she needs. I am across the country from her and I just want to be there for her so badly. She has my husbands parents close to her (about 45 minutes) but her mother lives with her and thinks that still even though she is battling breast cancer should be taking care of her mother first.



I want all of the moms out there to be aware, I know that breast cancer is reduced by breastfeeding but not IBC. IBC cant be seen on a mammogram and is often misdiagnosed as an infection of the breast ducts (like mastitis) and has the same symptoms of mastitis (swelling, redness, pain to the touch) it also has visible signs on the skin that are easy to ignore (small red bumps that look like bug bites, skin changes and is rigid or gets an "orange peel" effect. IBC is rare but occurs more often in women in their 30's. It does not cause a "lump" which is what everyone is used to looking for and aware of.

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The Breast Cancer Society, - posted on 09/21/2011

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Hey, I work with the Breast Cancer Society! If anyone is looking for support or any kind of assistance please feel free to contact us! 480-284-4014 or visit www.breast cancersociety.org

Cori - posted on 01/23/2010

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sooo!! good news on the booby front.. the cancer is only in the one breast that they did the biopsy on and it has only spread to 2 lymph nodes!! my lovely aunt starts chemo on tuesday :( but the news is looking good so far! we are all hopeful and glad that i have a method to vent about all of this too! thanks for your positive thoughts!

Linda - posted on 01/21/2010

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Just being there for her mate helps in so many ways. I am a survivor of breast cancer of two years and thank god every day . i now help out with our relay for life in cessnock to raise funds for cancer and to find a cure to this horrible desease. There is hope out there and with the love and support she can get through anything. chin up mate i do no how hard it is as when i went through the chemo and radiation it was very hard but i did and still do have a great support team behind me

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In terms of early detection, there are two types available besides the traditional mammogram. A MRI of the breast can serve as earlier detection, but insurance will not cover this unless you have a first degree relative with breast cancer. The other test is fairly new and non-invasive. It is called a thermal scan and detects even earlier than a MRI. This procedure is available by only a select group of providers. You would have to be able to locate one in your area. Thermal scan is not covered by insurance but offers peace of mind and will detect very, very early inflammatory changes in the breast tissue.

Anissa - posted on 01/20/2010

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i understand my mom is now going thru two dff types of breast cancer had a partial masectomy and lymph node removal on the 8th now they say it was worse than they thought and are trying to figure out which type of treatment they need to do next so i completely understand ever feeling you are having but like i said i here if you have questions or just want someone to talk to

Cori - posted on 01/20/2010

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i am glad that there are encouraging stories out there.. i keep reading and hearing all of these stories with little success.. and its just scaring me more. i am just so worried about my aunt.. she is an amazing person and everyone loves her so much. we are all here for her to support her and do what we can and i just wish that i could take her pain from her...

Anissa - posted on 01/20/2010

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hey i a sister in law that was diagnosed 2 yrs ago. she is doing good god even granted her request for her hair to grow back curly so she would not have to perm it anymore! god can do all things so do not forget that if you have any more questions feel free to ask

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