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Anyua - posted on 02/24/2014 ( 3 moms have responded )

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Hello. Just saying hello for the first time. I am Anyua and my 6 year old daughter, Jaiya has been dealing with the disorder since she was 16 months old. On December 10, 2013 her hematologist told us that she now falls in the Severe Chronic Neutropenia because of her age. We now take Neugopen shots 3 times a week and as a result her total neutrophil counts have been much better. I have always wanted to connect with other parents who are experiencing what my husband and I are going through.

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Anyua - posted on 02/24/2014

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Thanks so much. I googled support for the disorder and circle of moms came up. I was able to see post from other moms going through this and decided to sign up. I am not sure if I checked the right boxes to chat with other parents in the same boat but I am so glad that you responded in such an encouraging way. Thnaks.

Sarah - posted on 02/24/2014

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Hi Anyua! I have no kids who are going through this thing but I wanted you to know we are here for you!

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