just found out that something a mother wouldn't want to hear! !

Clarassa - posted on 04/17/2015 ( 2 moms have responded )




Yesterday I found out one of my twins is blind it hurts so much!! see my son had a lack of oxygen at birth so he was hospitalized for two weeks to find out he has seizures n development delay now just finding out he is blind is so much so I'm reaching out trying to find other parents with kids or child like mine!


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Ev - posted on 04/18/2015




I may not understand what you are going through or what your child is going through but I can offer some advice that is more for getting the help you need to help him through his delays, being blind, and any other issues that he may be facing. First, take a deep breath and let it out. There is help out there if you can find the right people to talk to to find the resources. Second, there are others out there even maybe where you live that are going through similar things. And third, Advocate for your child as much as possible.

The resources I spoke of start with the doctor or peds doc your child sees. You need to ask him or her to have an evaluation done for your son so you can find out what else besides the blindness that he is delayed in so he can get help for it. Next, this doctor should be able to give you the names of organizations in your area or in another city close by that can help you start getting help for your son in the forms of therapy, working on his delays and lastly if there is such a place in where you live a School for the Blind. They can be a great resource for you to teach your son things he will need to learn growing up. THey do more than teach the child to read and do educational things but even life skills such as how to learn to dress, how to walk without running into things with the use of the cane, and so much more. I used to work with kids with delays, disabilities, and other issues. I even worked with blind children. I know this not only because of working with them but because I also learned about their services that the organization provided for the kids.

Also on another topic related to his blindness, you might check into getting him on disability too. That will also help with insurance such as medicaid. If this is something you can get where you live as its found in the United States and I do not know where you are.

Jodi - posted on 04/18/2015




Clarassa, I am so sorry you are having to deal with this. Please ignore our resident troll and her cruel comments - she isn't worth the oxygen. I am sure there are others out there having to deal with what you are dealing with, and I wish you all the best.

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