Kyphosis/ Scoliosis

Kate - posted on 10/30/2009 ( 8 moms have responded )

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my son has a rare condition called kyphosis on top of scoliosis. to our knowledge he's the youngest baby ever to have this problem and the surgery to correct it. hes only 6 months old. i know the odds that someone else has a baby with this particular problem are astronomical, but share your story. give us some hope

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Ketti - posted on 05/15/2015

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There is another option! My daughters spine has been corrected by a special Dr. In Minnesota. His name is Dr. Dennis Woggon. He has made a huge difference with no bracing and no surgery. The medical field will mislead you into bracing and then surgery. There are hundreds of teens at this advanced scoliosis clinic that are seeing success!

Amber - posted on 03/14/2013

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Hi Kate. We have a daughter that was born to us a year ago. We anxiously awaited for her and were delighted when she came. Upon arrival I noticed a small lump on her back. We asked about it at each of her checkups and were told it was a muscle. At her 6 month checkup we asked that they please look more seriously at it and they did, ordering an xray. The xray showed our daughter had severe scoliosis. After meeting with a surgeon we found out she has congenital scoliosis with a kyphosis curve also. Looking at her you would never suspect she has a 47 degree curve. She sits perfectly straight. Her kyphosis we can see... she does have a hump on her back as she sits. We have been going back and fourth to Rileys in Indianapolis and Shriners in Chicago. At this point its just waiting. Our hope is she will not need surgery.. its a hope. Our blessing is she is healthy!! She has at this point, no other health symptoms. :) I seen you posted this in 2009.. I would love to hear a update.

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I don't know if this will help. My sister has scoliosis and had surgery to correct it although she was a lot older than your son at the time (my sis was 13 or 14 at the time). She had 2 metal rods placed in her back, one on each side of the spine, to help straighten it. The rods have since been removed, apparently they can only be there for a certain amount of time. My sis is now 30 and as of yet the curve hasn't returned. Her doc says that there's a good chance of her having problems later on (when she's a senior) but so far so good. I hope all goes well for your son. ((hugs))

Bekki - posted on 10/31/2009

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A chiropractor will not fix scoliosis or kyphosis. Scoliosis is a side to side curvature of the spine.. Kyphosis is a lengthwise curvature of the spine.. Surgery is the only option for that, or lifelong brace wearing.
Sorry to hear your lil one has both of these, but its good that you know it so early the odds of fixing it are so much better. Young bones and bodies bounce back quickly and quite effectively .. So theres an upside!

Karen - posted on 10/31/2009

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You might be interested in trying a holistic approach. There is a very gentle bodywork called Craniosacral Therapy. Google this to get more info. There is a therapist specializing with children in Swansea Ma, Sue Cotta. I know it can help your son!!!

You are in my prayers,
Karen

Erin - posted on 10/31/2009

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Please try a chiropractor! I have taken my kids to our chiropractor since they were born. My husband has scoliosis and it has helped, but it would have been SO much more effective if he had been corrected when he was little. I'm not familiar with Kyphosis though.

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