Christine - posted on 05/05/2016 ( 1 mom has responded )
I am the grandmother of triplets one of whom has Infantile spasms. They are 4 years. The other 2 girls are fine. Elizabeth started her seizures at 3 months. Prior to that she was fine. She now can only roll over and sit up briefly on her own and hold her bottle. It is unclear if she is aware that her parents or siblings exsist nor me and my husband.
No where can I locate any info. on the life expectancy of Elizabeth.She has excellent medical care and when she has had lung infections she is admitted to YALE Hospital. She is about the same height as her sisters but weighs less as she has never developed muscles. Does anyone have any idea in regard to the life expectancy. We love her very much but realize there is practically no future for her to gain physical or cognitive abilities.