living with one lung

Jo - posted on 04/06/2011 ( 6 moms have responded )

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my child has only one lung functioning has anyother child got this problem

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Shamita - posted on 12/12/2012

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It was very encouraging to see a post regarding living on one lung from you. My son was diagnosed with left pulmonary artesia, so there is no blood supply to his left lung. Doctors tried putting in shunt and then connecting it normally but now the docs are not sure if the vessels inside the lung are growing or not. So, basically they are saying that time will only decide if those vessels will grow. Right now, his right lung is doing most of the job. Doctors are convincing us that people live normally on one lung.

I am very stressed out and I do not know anybody living on one lung. It is really convincing to see your post. Can you please get in touch with me.

I really appreciate your support. Thanks!

Jo - posted on 04/14/2011

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hi my child has no pulmonary artery to her right lung she struggles with physical exercise she has been to bristol childrens hospital they were going to put a shunt in to her right side of heart and lung. they couldnt find a artery so she has to live with this problem. she has open access to the local childrens ward and has physio and antibiotics to prevent infections. jo

Amanda - posted on 05/27/2012

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On the 24th of February 20011 my 3rd son was born 6 weeks early. He initally looked ok but then struggled to breathe as he didn't get the natural steriod that babies get from the Mum at about 35-36 weeks gestation. They gave him steriods but he was still stuggling so after more steriods and another x-ray he was transfered to the local childrens hospital where a CAT scan showed he had only the one lung. His left lung never developed. Apart from suffering badly with colds (we have developed a good system between my local doctor and the specialist at the hospital so that it doesn't develop into pneumonia) he will be able to function like any other child. The Doctors have said he will not be able to deep sea dive or be a smoker but as he gets bigger and stronger so will his lung. Aparently the left side is the better side to have absent as if it was the right side he may have had trouble with his heart as it would want to move over the the void and that would cause some tears and pulling of the heart. He has many follow ups and has also just had his operation for his kidney reflux, so we are looking forward to him growing stronger everyday.

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User - posted on 06/09/2011

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Jo Hunt...
Your child was born with an absent R pulmonary artery? My 3 month old daughter was born with an absent L pulmonary artery. We did the open heart surgery to attch the shunt to what the surgeon thought was the artery, but it was very small in diameter and we recently found out the shunt was unsuccessful. Our surgeon wants to try one more time, and my husband and I are hesitant. We are being treated throught the University of Minnesota Children's Hospital. We know we are in good hands, but we are trying to be realistic with her probable outcome of only having one functioning lung.
How old is your child? When/how did you find the defect? How is he/she affected on a day to day basis?
I am shocked that I was able to find another mom going through a similar situation since this defect is so uncommon. I would appreciate any feedback!
Thanks,
Cailin

Florencia - posted on 04/10/2011

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My child has both lungs but they are very sick. He has chronic lung disease. He just recently got trached and got a G tube. He is doing very good now and we have high hopes for him. How about your kid? how is s/he doing? My son is still in the NICU. Is your child? Are you waiting for a transplant?

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