Looking for experience with a PEG/G-tube

Linda - posted on 10/17/2013 ( 2 moms have responded )

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Hi,

My son of 20 months had the PEG/G-tube surgery last Friday. He seemed to be doing fine but then he developed a fever and the wound got infected. Probably because of the infection the opening is now too big and leaking large amounts of food which doesn't help the infection to heal.

He now has a duodenum tube since tuesday to keep his stomach as empty as possible to give the wound a chance to heal and hopefully become narrower.

Does anyone have experience with this kind of complication? We are still not confident this is going to resolve by itselve and we're afraid we put him through all of this for nothing.

Thank you so much!

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Linda - posted on 10/18/2013

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Hi Kathleen,

We are still in the hospital so he's been seen by doctors every day :-)
It's just that they haven't seen this complicationof the opening becoming too wide because of infection before.

So they can't assure me it's going to be ok and I'm just looking for similar experiences and off course how it ended.

Thanks for your reply!

Kathleen Sue - posted on 10/17/2013

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Linda, I hope you took your son back to the Dr. when he developed a fever. It isn't so unusual for a child to get a post-op infection, but for all care from diapering to feeding, you should be scrubbing well with antibacterial soap AND wearing disposable gloves.Always change the gloves between each procedure. The drainage is infection.You should be aware of its color and smell.I know this sounds gross, but there is a normal odor and color to the drainage.Should those change, and become even more gross,, and fever develop, he needs urgent care!
You should NOT be seeing food outside the tube.That means it has probably become dislodged from the stomach,and the food will be of no nutritional value.
Have you contacted your pediatrician? This won't go away by itself! He will need antibiotics to help fight the infection, and might need to be re-hospitalized.
BUT, don't take my word for anything....he needs to be in the hands of a DR. and you need the Drs. advice here. Once he is stabilized and doing well again,you will be able to handle it. Hang in there.These things are scary, even if the child isn't your own. Listen to your Drs. and have them put everything in writing..all the instructions, so you can refer to them frequently until you feel confident.
Good luck!! And let me know how it goes?

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