Looking for mom's of 'older' trach children.

Trish (Bullard) - posted on 07/15/2012 ( 6 moms have responded )

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Looking for mom's of trach children. My daughter is 20, has cerebral palsy, ulcerative colitis, a feeding tube and was placed on a ventilator this past February and received a trach in March. We're learning at we go along how to work with a trach (which doesn't mix well with humidity) and how to handle 24 hour nursing (which isn't as easy as one would think). I'd love to hear from others who have walked similar walks.

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Trish (Bullard) - posted on 07/16/2012

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Thanks, actually I looked yesterday and just decided to toss the post out and see what response I had. Thanks!

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Dora - posted on 07/21/2014

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hi my name is dora. I have a daughter who is twenty and was put on a ventilator due to damage done to her by the hospital . it was like she was a cheerleader one day and on a vent the next. She was put on it when she was thirteen I am thankful that god has helped her get rid of the feeding tube and she has a good attitude about her situation she is unable to move but is trying to regain some of the movement s in gods time not hers ....she graduated high school by home schooling and using a dragon on the computer to do assignments ...I am looking for other teens that may become friends with her that know how it is to be where she is at...some people can be cruel

Kristi - posted on 11/12/2013

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Hi. I have a 14 year old son on a vent . He has congenital myotonic muscular dystrophy and a feeding tube also.
He was 3 months premature and was trached at 4 weeks old.

Mary - posted on 02/18/2013

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i have a 14 year old that got a trach in dec 17 2012 and she has cp and feeding tube but im still trying to no sounds like when she is sick and the sucking out is crazy and thay wont give us a nurse cause she isnt on a vent

Sharlene - posted on 07/16/2012

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Well keep your post and see if there other mums to chat with here .take care

Sharlene - posted on 07/16/2012

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Hi there, I don't have a older child but my little girl is 2 yrs old with mild CP and a feeding tube and other GDD , Have you tried other special needs communities here on com, take care

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