Annie - posted on 02/11/2014 ( 2 moms have responded )
Hello! My son was born on June 17, 2011. He has complete agenesis of the corpus callosum. I'm surprised at the lack of information is received about this condition, and the apparent lack of interest it seems his doctors show towards it. He was premature, and I feel like all of the problems that have raised since his birth and beyond, they have attributed to prematurity. From my personal research, however, I have found that almost all of his so called "problems", and common symptoms to ACC. I would love to chat with parents who have children with similar problems, and can give a little more detail about my sweet boy. I feel like I have no resources, I don't know where I can turn for information on this! Thank you!