Sharon - posted on 03/06/2014 ( no moms have responded yet )
It would be so good just to converse with other moms out there as support. My son is 34 years old, quite high functioning but prefers the computer as his constant companion.
Rob is also totally blind. He uses a screen reader and is very proficient on creating mp3 files from books, music, interviews of his favorite topics, authors, and subject matter around his interests.
I guess I have to say that I am thankful that Rob is blind as that put us in the world of Special Ed. and introduced us to all kinds of support and therapy addressing his condition. While it was obvious that he was totally blind the Aspergers did not get diagnosed until he was @11 years old. Fortunately we had some wonderful teachers and one in particular that focused on blind/autistic kids.
The point I want to make is this: Over the years I have come in contact with moms of boys with Aspergers that were never identified within the school system, thus these now adults are having many very serious problems from attempt of suicide to trouble with the law. It is a very serious concern and I feel that it is ignored by teachers, psychologists, etc. within the education system when dealing with the very young children. I am not recommending fear put into the parents but the realization of what may lie ahead I feel is extremely important.
If there is anyone reading this that has experienced similar circumstances or concerns I would love to talk with you. I feel strongly that there is a need for parents to be informed and educated on what may lie ahead for their child and for them. It is most disconcerting when you are told by the social worker, law enforcement or whatever that you have no rights once your child is 18 and you find your self totally helpless. Fortunately, I have a guardianship for my son. This means the authorities have to talk to me. This is a good thing.
I look forward to hearing from you and find out your situation.