Mother of a 2 yr. old Charge syndrome baby. Feeling overwhelmed - any sudgestions?

Vicky - posted on 12/28/2010 ( 2 moms have responded )




Feeling overwhelmed with all that implies to be a mom dealing with a Charge syndrome baby ... My liitle one is the cuttest ever, but the medical issues ... one after another is leaving me tired and sad ... anyone out there with the same issues???

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Jennifer - posted on 11/27/2011




My son was diagnosed with partial CHARGE and Dandy Walker Variant. I understand your being tired, overwhelmed and alone at times. My son just celebrated his 1st birthday. It has been a jam packed year for me, especially as a single mother. With God and Jesus Christ I don't know what I would do. God keeps me and my son. He will do it for the two of you as well mama :).

Momma - posted on 12/29/2010




I don't have a child with charge syndrome, but my baby does suffer from febrile seizures and brain damage as a result of the seizures. So I know how you feel about constant medical issues. If you need to vent or someone to just talk to you can PM me and I will try to help or just be there as much as I can.

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