Richael - posted on 07/05/2012 ( no moms have responded yet )
My daughter was born August 13, 2011. She was born a healthy little girl. At about 2 weeks old I started to notice something just didnt seem right. She just wanted to lay there with no real interest in moving. When most babies start holding their head up she didnt want to. I kept asking the dr they would say shes just alittle slower than most. At 4 months the dr finally said yes something does seem right. Set her up with TEIS. They checked her out said she was fine. At 6 months she finally held her head up. They sent her to a Neuro and they said she had low muscle tone. Did blood work which came back off. Found out she has a serious heart condition (Cardiomyopathy). Cardio tested her a sec time test came back higher than the first time. Still not up to date on her milestones. This week I find out that her MRI showed just like the blood work that she has MD but also that her brain is too small. So confused on this. She goes at the end of the month to have a Microarray test done. Hope to get some answers. Has anyone else been through this? If so what are your thoughts?