My 18 month old daughter was born at 32 weeks gestational and with hydrocephalus. She currently can not sit up on her own and she has very little head control. I just wanted to hear some similar stories to see if things could get a little better. She is curremtly in PPT and OT, might be starting ST soon. She has some hearing loss in one ear so she does wear hearing aids. She is due for a new vision test so im not sure just yet as to where she is there but, from previous testinh her vision should be fine. She has had vp shunt since she was 3 days old and has had one revision a couple months before she turned 1 year old. She's also started having very mild seizures in which wr are in the process of getting under control. I just would like to hear from moms with similar stories.
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