my 2 1/2 yr old daughter has hirshspungs diease and has a gtube since she was 5 months old and she is slowly eating table food....does anyone have a child with the same diease and with a gtube?? will she always have to be on a feeding tube????

Jackie - posted on 12/05/2012 ( no moms have responded yet )

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does anyone have a child with the same diease and with a gtube?? will she always have to be on a feeding tube???? she also is always in and out of the hospital

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