my 2yr old child constanly screams. his behaviour is getting out of hand. he only sayd dad, wow n oh no. waiting on blood test for fragile x. im at my witts. health visitor is absolutely useless. am i eligible for respite care??? pls help

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Firebird - posted on 04/25/2011

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My daughter's 6 years old now, she does go to public school, and so far she's doing very well there. I manage her alright (at least I think I do lol) but some days are better than others. For all my daughters interventions, I have to arrange most of them myself, but to get her diagnosis the doctors were all very helpful, it's too bad that you're having to do this all on your own. I would also suggest a babysitter, even just for an hour of two, once a week. I would also suggest getting your son's hearing tested. That could make a big difference. Keep at it, you'll be fine!

Karin - posted on 04/25/2011

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My son isnt autistic but he has boughts of screaming/hitting when hes angry. And it doesnt stop normally for around 5 to 15 minutes depending on where were at. He does it when we go out and at home when we dont give him what he wants. I know its tough for you honey just hold in there!!!!! Try relaxation or destressor techniques if at all possible. When he is in a good mood or quiet try taking a minute to yourself and do something you like. Are there any support groups or playgroups in the area? They help a great amount even if its only for an hour every week. As for respite care my son doesnt qualify and he has a speech delay. Through the army i get 16 hours a month of free respite/daycare to do whatever i need. Which helps with doctor appointments and an hour or two myself. another suggestion try looking into a babysitter so you can get some free time. It may get expensive but for your sanity it can and will help you out! It helepd me. Hang in there!

Shakeela - posted on 04/25/2011

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the health system professional here in lodon are absolutely useless. ive had to arrange appointments myself and continue to do so. how old is yr daughter? r u managing well? does she go to mainsteam school? i will continue my fight but im so drained :(

Firebird - posted on 04/25/2011

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My daughter is on the Autism spectrum, and I don't qualify for respite since her Autism isn't too severe. I'm not sure what the qualifications are in London, as I'm in Canada. Your son's doctor should be able to at least tell you who can give you that kind of information. A ministry of children and family services might be able to help too. I'm not sure what you've got available over there.

Shakeela - posted on 04/25/2011

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hello joanna many thaks for yr reply. i live in london and awaiting blood results for fragile x and autism which takes 3mths! only until them i will know. my son has been seen by a pediatrician who can see some relations to autism but has severe social development. i have no family at all. will try to see if i can get the results earlier x

Firebird - posted on 04/25/2011

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No one can tell you if you're eligible for respite care unless you tell us where you live. Usually you can't get respite until you get a diagnosis though. Do you have any family near by that can take him for a few hours so you can get a break?

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