my baby was started on pulmicort...

Jennifer - posted on 03/22/2011 ( 4 moms have responded )

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My daughter, who will be 6 months in a week was started on pulmicort nebulizer treatments about 2 1/2 weeks ago. She has caught just about every respiratory bug out there this winter it seams like. She has been hospitalized 4 times! One of those times was because of RSV and her oxygen levels ran a little low (between 89-92). The last time was for pneumonia. This time her oxygen didn't drop quite as low (91-94), but everyone who listened to her could hear wheezing. Even after 4 days of IV antibiotics and albuterol breathing treatments (the pneumonia was cleared up) they could still hear wheezing and her oxygen stayed around 92% the majority of the time. Her doctor diagnosed her with reactive airway disease and said if it continued (once we take her off the pulmicort after flu season is over) then she would diagnose her with asthma. Well, last week I had to reorder her perscription which should have been ready Fri. I didn't get a chance to pick it up then, so I sent my hubby on Sun, because she didn't have any left and she is supposed to take it every 12 hrs. The pharmacy never bothered to call and tell me that they wouldn't have it in til Mon. I started looking on the net to find out if it would be ok for her to miss the 2 doses she should have til they got it in, and found a bunch of stuff about side effects of being on it to start with and it scared me. The ones that scare me the most, are the attitude changes and the possible stunted growth. My daughter has always been an incredibly happy baby. Even when she is sick and in the hosp, she smiles and laughs almost the entire time. For about the last week, she has been a lot more fussy, which until I read about the side effects just figured she was starting to teeth even though I can't feel anything yet. With the growth part, she is already a lot shorter than my other kids were at her age. All my other kids ran between the 75th-95th% for their height at this age, and she has been steadily at the 25th% for her age since birth. Obviously that's nothing to worry about normally, but I'm worried that she will begin to drop even lower. I would hate to stop this med, because about a week after being in the hosp, her doc listened to her and no more wheezing, and her oxygen was 96%. So, I know it is helping her breathe. Any other moms have experience with this stuff, and did your child have any of the side effects? What did you do about it? Am I just being paranoid?

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Jennifer - posted on 03/22/2011

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I can't mess with the formula, because she is allergic to milk and soy proteins and Nutramigen is the only one that doesn't cause diarrhea. She has had croup countless times and needed oral steroids to help reduce the swelling, so I imagine that is why she has caught so many bugs. Plus my older 2 are in school, and even though they have to take their shoes off at the door, then head straight to the bathroom to wash hands, they still bring a lot of germs home.

Michelle - posted on 03/22/2011

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I don't know what is in the formula, but you might read the ingredients. When our bodies are week we are susceptible to illnesses. Sugar weakens our bodies. If her formula has sugar or a form of sugar as a main ingredient you may want to consider switching. Also,she has had a great deal of antibiotic which does take care of infection, but it also strips the intestines of healthy bacteria. Adding yogurt to her diet might help. I do hope you find a solution. It is horrible to have your child sick.

Jennifer - posted on 03/22/2011

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No, I tried, but my milk caused her to become very jaundiced at 1 week old(actually had to be life flighted from the local hosp. to the nearest children's) and she dropped 1lb 4oz by day 10 (was 7lbs 4oz at birth). So they told me I could try pumping and supplementing to help her gain weight and to flush the jaundice out, but I tried pumping with my 3rd child and it took so much extra time, that I knew I wouldn't be able to handle doing that with her and take care of my other 3 kids at the same time. She is on formula now and has been since she was 10 days, and has steadily gained weight since. I just started her on solids Sat., but she started with the extra fussyness before then.

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