Jennifer - posted on 03/22/2011 ( 4 moms have responded )
My daughter, who will be 6 months in a week was started on pulmicort nebulizer treatments about 2 1/2 weeks ago. She has caught just about every respiratory bug out there this winter it seams like. She has been hospitalized 4 times! One of those times was because of RSV and her oxygen levels ran a little low (between 89-92). The last time was for pneumonia. This time her oxygen didn't drop quite as low (91-94), but everyone who listened to her could hear wheezing. Even after 4 days of IV antibiotics and albuterol breathing treatments (the pneumonia was cleared up) they could still hear wheezing and her oxygen stayed around 92% the majority of the time. Her doctor diagnosed her with reactive airway disease and said if it continued (once we take her off the pulmicort after flu season is over) then she would diagnose her with asthma. Well, last week I had to reorder her perscription which should have been ready Fri. I didn't get a chance to pick it up then, so I sent my hubby on Sun, because she didn't have any left and she is supposed to take it every 12 hrs. The pharmacy never bothered to call and tell me that they wouldn't have it in til Mon. I started looking on the net to find out if it would be ok for her to miss the 2 doses she should have til they got it in, and found a bunch of stuff about side effects of being on it to start with and it scared me. The ones that scare me the most, are the attitude changes and the possible stunted growth. My daughter has always been an incredibly happy baby. Even when she is sick and in the hosp, she smiles and laughs almost the entire time. For about the last week, she has been a lot more fussy, which until I read about the side effects just figured she was starting to teeth even though I can't feel anything yet. With the growth part, she is already a lot shorter than my other kids were at her age. All my other kids ran between the 75th-95th% for their height at this age, and she has been steadily at the 25th% for her age since birth. Obviously that's nothing to worry about normally, but I'm worried that she will begin to drop even lower. I would hate to stop this med, because about a week after being in the hosp, her doc listened to her and no more wheezing, and her oxygen was 96%. So, I know it is helping her breathe. Any other moms have experience with this stuff, and did your child have any of the side effects? What did you do about it? Am I just being paranoid?