Joan - posted on 04/08/2014 ( no moms have responded yet )
He was found at the student center having an episode . We were. 4 hrs away and got the call from the hospital ER . They couldn't find any definitive answers . We took him home to see his primary Dr. Same thing .. No answers . A day later he had a major seizure at 3 am . I held him . Screamed for Dad . He called 911 . My son was transported to the ER . And after was dx with JME . He also has Type 1 diabetes since 8 . Every thing is on hold for him . His college won't help . He has to withdraw from 2nd semester. He is a 3,75 GPA . I'm so afraid to leave him alone !!