Kathy - posted on 06/02/2015 ( no moms have responded yet )
My daughter had a full complete TOF repair at 7 months. That was in 1978. She is now almost 38 years old with two children. That is the good news. She has had a stent and probably needs a melody valve very soon as her right ventricle is wearing out. The total fixes will get you through to middle age, then new interventions may become necessary. Just a heads up. Brace yourself, this is a lifelong disease, despite the total repair fix.