My daughter has Rhabdomyosarcoma...Need Support.

Kimberly Wodd - posted on 11/15/2013 ( 2 moms have responded )

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My daughter has been dealing with this demon almost 3 years. I would love to talk to other parents that are going through this same thing..

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Kimberly Wodd - posted on 11/16/2013

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Thank you Timothy...
God bless, and hope you find some comfort and many prayers.

Timothy - posted on 11/15/2013

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Hi Kim, my son also has Rhabdo. Dx stage 4 alveolar type with mets to lymph nodes in March 2012. I have found many other parents and caregivers of kids with Rhadbo on the acor.org page. It is a list serve type page with over 400+ members in the rhabdo-kids group. Just have to register and then over 10+ years of searchable archives are available and the families who post daily have given me much strenght even thou I dont post often. My best to you and your daughter and your family. Please email me at timscheerer@uesfl.com if I can help you in anyway.

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