My daughter has Rhabdomyosarcoma...Need Support.
Timothy - posted on 11/15/2013
Hi Kim, my son also has Rhabdo. Dx stage 4 alveolar type with mets to lymph nodes in March 2012. I have found many other parents and caregivers of kids with Rhadbo on the acor.org page. It is a list serve type page with over 400+ members in the rhabdo-kids group. Just have to register and then over 10+ years of searchable archives are available and the families who post daily have given me much strenght even thou I dont post often. My best to you and your daughter and your family. Please email me at firstname.lastname@example.org if I can help you in anyway.
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