My daughter is 9 and was diagnosed with Cyclic Vomiting Syndrome. Anyone else have a child that has been diagnosed with this disorder?

[deleted account] ( 2 moms have responded )

My daughter was diagnosed with Cyclic Vomiting Syndrome at the age of 8 after suffering for years with on and off vomitting at night a few times a month sometimes 9 months out of the year. She usually vomits at least 15 times within the first few hours and then is very lethargic and vomits on and off sometimes for a couple days. She does get the abdominal migraine with the vomiting where she gets the intense pain in her belly in between vomiting. This is all usually brought on by her being stressed out, good or bad, and some foods that she eats. It is almost guaranteed that she will be vomiting on her birthday and holidays. It is very hard for her and us as parents knowing that this is something that we cannot make go away. They say that it usually moves into actual migraines of the head as they go into the teen years. Right now they have her on Omeprazole liquid for reflux which helps tremendously with the tummy aches that she used to always complain of and we also have Phenergan suppositories to give her with the onset of vomiting which have really seemed to help as well. I was just looking to hear of any other experiences that people may have had with this and what helps them cope?

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Sherrie - posted on 12/18/2008

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I would suggest you take your daughter to a Wellness Center, that deals with sublaxation. If a person has an area in their body not functioning properly, it may be due to sublaxation. When the central nervous system is sublaxated, it cannot send the signals to the organs to function properly. I am not sure where you are from, but we go to Amarillo Family Wellness, and I personally have been healed of similar stomach problems since we started wellness care. Meds deal with symptoms, the wellness care works on the problem. They work on children & adults from newborns to senior citizens. The results are amazing. At 9 years old, if she doesn't get some releif soon, it could become chronic illness and disease. Bless you and we will keep you in our prayers.

User - posted on 12/18/2008

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We went through the same thing with my son. We could always plan on it the night before the first day of school...on vacations...night before field trips... Our Dr told us to give him a little Coke Classic before bedtime if we thought it would be "one of those nights". I really felt like that worked. He seemed to outgrow it with puberty. It's been a while since then so it's not fresh in my mind. Let me know if you have anymore questions.

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Donna - posted on 10/05/2017

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ive just been told my 8 year old son has cvs. I hadn't heared of it before. he's been being sick now for the past year on and off but at the moment he's sick every day and all throughout the day. its really affecting his school now because he has missed so much. how long do episodes usually last for? he was admited Thursday and put on a of drip and sent home 2 days later with anti sickness tablets but I've seen no improvement at all. finding it really difficult to make sence of it all. hate seeing him being sick not that it bothers him now he's so used to it! any advise would be great thanks

Carrie - posted on 08/13/2014

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We are going through this exact thing with our 8 year old daughter! The last few episodes she ended up in the ER needing different anti-neasua meds and ivs and the most recent episode which was just a couple weeks ago she ended up being admitted to the hospital for a couple days for the severe nonstop vomiting! It has been very stressful for her as well as us, her parents!! Bdays, holidays, and exciting or stressful events tend to be her main triggers!! I'm just really praying that she will eventually outgrow her CVS in the near future!!!

[deleted account]

Coke Classic? That is easy enough, I will have to remember that. I hate to even say it aloud, but we have had a decent year this year so far with only a couple episodes that stick out in my mind. I think as she gets older she is getting a handle more on her feelings and knows that she needs to stay calm when reacting to situations or an attack can be brought on. She has been complaining more of headaches though, so I don't know if that is part of this or just a hormone thing with being a tween?? I suffer from migraines/daily headache and they say she has a good chance to follow in my shoes and with having the abdominal migraine since a toddler on they are not surprised she is moving into headaches now. The wellness center is a good idea as well, especially now with the headaches. I do have a great pediatric chiropractor that she sees that helps during difficult times. Well, good luck to all of you. Thanks for the advice.

Mindy - posted on 09/07/2009

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My 17 year old Autistic son was finally diagnosed with CVS approximately 18 months ago. He has suffered with this since he was 13 months old. Reducing his anxiety actually makes a difference...I know, easier said than done. I wish you the best of luck!

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