my daughter is autistic and start her period questions and concerns

Lora - posted on 09/24/2014 ( 8 moms have responded )

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my daughter started her period and its so hard explaining whats going on to her body. i know all woman go threw this and i explain to her. i got to watch all her moves when it comes to this, she wont wipe, or clean her self. i caught her this morning leaveing for school with out a pad, or even underwear on. and she on her period. she is artistic so i explain things slower and easier and its just not getting threw. HELP

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♫ Shawnn ♪♫♫ - posted on 09/24/2014

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If she is so autistic that she cannot maintain personal hygiene, she needs to have a full time aide with her. I was an aide in the school system for special needs children, and this was one of the things that we had to do, full time.

It is not up to the school nurse, it is up to you to get an IEP in place for her so that she has the tools and people involved that will help her succeed. The autistic young ladies I worked with had been given a basic understanding by their parents of what to expect. Perhaps you also need to learn how to better communicate with her. Check with social services in your area to see what programs can help you learn to communicate more effectively with her, and get an IEP set up with her school.

Sarah - posted on 09/24/2014

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Yes, I see this is more complicated now. Perhaps a behavioral aide or occupational therapist may have some suggestions. The school nurse will probably be somewhat limited, in this era, to help out. I am a school nurse and I cannot even go into a restroom alone with a child. I do think a long calm discussion about the basic hygiene techniques will be most important.

Sarah - posted on 09/24/2014

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I hope for her sake she is just spotting at this point. Does she typically struggle with hygiene? I guess I would focus on the most important items first...She doesn't really need to understand the anatomy and physiology at this point right? she will survive if she doesn't wipe super well (or at least a nightly shower can help) I think if you can't get her to wear a pad or even underwear, and she bleeds through her clothes, she is going to be very humiliated. Perhaps it's the bulkiness of the pad? As an autistic child she may be super sensitive to the sensation of the pad. Maybe a lightweight pull-up, or adult diaper will feel more like her underwear and protect her dignity? Just a thought.

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Havenjones - posted on 05/26/2015

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sarah e,
Our autistic kids are very bright and when it comes to learning a new skill or any information they are very "black/white" and have difficulty with "gray" areas, so its very important to explain things factually and step by step. Routine and structure and repetition go a L-O-N-G way in making their days tolerable. They do retain the info even if it doesn't seem like it to us. :-)

Havenjones - posted on 05/26/2015

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I have a 7 year old and will be experiencing this in the near-ish future. She also has a very difficult time remembering/following through the steps involved when using the washroom so I understand what your going through.
You could try putting together some social stories about your daughter having her period. You could put together a couple of books for her with a combo of words/pictures printed off of the internet and photos taken of her. One of the stories could be explaining what happens to her body when her period comes. Such as pics of ovulation and the female anatomy. The second can be about what she needs to DO when her period comes. What the different types of products are available, taking a pad from the box, then one of a pad placed properly into underwear, then a pic of her grabbing a wet wipe from the counter, then of her washing her hands, and even a pic of her putting a pad into her backpack for school. Maybe a watch/ipad with a timer set to remind her when to check/change her pad.
I find social stories can help with pretty much anything, and can be referenced any time she needs.
Good luck!!!!

Lora - posted on 09/24/2014

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she has a one on one in many classes , i am going to call the nurse soon and tell them the problem and to just watch out for her

♫ Shawnn ♪♫♫ - posted on 09/24/2014

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If she is autistic (I'm assuming that is what you mean, rather than artistic)...that takes a different level of communication, and constant, constant monitoring in this situation. Does she have a school aide that she works with?

Lora - posted on 09/24/2014

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she gets really upset easy very high emotional, she has a learning disability, i dont think its about the pad. its about the hole situation and understand why. i just dont know how to word it right for her to understand why we gotta do this and keep up with it. i am lost.. i have to stay on her about hygiene and brushing teeth..she is very forgetful.

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