my daughter went deaf at the age of 4

Kelley - posted on 02/06/2013 ( 3 moms have responded )

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hi just wanted to see if there were any other moms in my kind of position who would like to share their stories, i have a daughter called tamzin last year tamzin went deaf it was a big shock because she was born healthy and normal with no difficulties, we found out she went deaf from a viral infection i caught when i was pregnant called cytomeglavirus also known as cmv she now wears a hearing aid in her leaft ear and we went for the option of giving her a cochlear implant in her right ear she did loose some of her speech but is slowly getting that back she attends a mainstream school with a hearing impaied resource base which is amazing and she is curretnly learning sign language which is brillent tamzin does get frustrtaed sometimes which is only natural having to deal with such a big change i would like to speak to some moms in the same kind of situation would be nice to hear some different kinds of stories thank you

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[deleted account]

I hope everything works out for you and your daughter. I pray that it will get better for her and you. You are in my prayers.

Kelley - posted on 02/06/2013

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thank you for your reply that was very interesting and could be helpful to somebody else in a similar situation, yes i know it sounds stranage it took 4 years for her hearing to go its something not known at all its very rare but can happen if you read about cytomeglavirus it states that a child can go deaf up untill the age of 5 if not born ill, which is what happened to my daughter unfortunality yes she did have a bit of hearing left in her left ear which is why she was given a hearing aid unfortunality she lost all of her hearing in her right which is why we opted for a cochlear implant she does have her ears checked on a regular bases and and had mri's abr's scans etc so we know there nothing blocking her ears so from what the tests can show its just down to this infection i caught unfortunality it can only be dangerous if contracted whilst pregnant sadly there is a cmv awareness website which is brilliant because cmv is not known about at all but can change peoples lifes drastically! thank you for your response much appreciated

[deleted account]

Hello,

I am sorry for you problems on this. You had noted here that you had a viral infection while pregnant and then your daughter now lost her hearing due to that. It don't make sense when it took 4 years to do so. Then she has a hearing aid in her ear and can hear a little with that. It sounds like to me, that she still has her hearing and isn't totally deaf. More than likely something could be imbedded in her ear.
When I was a child , the school had told my parents that I couldnt hear and well tubes were put in and was only supposed to be in there for about a month or two.. well they never took them out for over a year. It caused a hole in the back of my ear and it would constantly bleed and such. Now, I have a hole in the back of my ear because of the doctors not doing their jobs right. They wanted to do surgery to close it up and I went through enough and wouldnt allow it. I went to a childrens hospital in dc and those people helped me with my problem there and never had all the pain like the other ones caused. Till this day, if I get air or water in my ear , i will get ear infections because of it.
My children was going to school and the teacher had done hearing test . they had told me that they couldnt hear and that tubes would have to be done and no way was that happening to my kids because of what happened to me. I had went to an herbalist store and bought some ear candles. I used these things on my kids and well they went to school the following day and had the test done again and well they passed with flying colors.. These things works. It literally drawed out all the gunk and stuff in their ears. My father had used the same thing because he said he was feeling like he was going deaf. Well, put it this way, he had so much stuff come out of his ears that is was disgusting.. he even has a fly that came out. The candle is inserted in the ear area.. not deep inside, just on the outside.. ( there is no pain involved at all). you have to have someone do this.. The candle is lit.. ( yes, it sounds horrible, but it works). you cut the candle off after it goes down so far and the heat draws out all the stuff in the ear and whatever is in there is coming out. It really works. I just thought I would tell you my story of what happened to me and my children.
It sounds like to me if your daughter has a hearing aid.. her hearing isnt totally gone. She more than likely has something in her ears. If you would try this.. you might just see a big difference. I know i did.

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